Research informatics and the COVID-19 pandemic: Challenges, innovations, lessons learned, and recommendations
| Autor: | Sean D. Mooney, Emily R. Pfaff, Nick F Tsinoremas, Svetlana Rojevsky, Rhonda G. Kost, James J. Cimino, Adam B. Wilcox, Jonathan N. Tobin, Christopher A. Harle, Richard J. Bookman |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
medicine.medical_specialty
020205 medical informatics Translational research 02 engineering and technology Clinical decision support system 03 medical and health sciences 0302 clinical medicine Public health surveillance Political science 0202 electrical engineering electronic engineering information engineering medicine informatics 030212 general & internal medicine Clinical data repository Medical education research Public health COVID-19 General Medicine N3C Translational Research Design and Analysis Special Communications Informatics Survey data collection CTSA Translational science |
| Zdroj: | Journal of Clinical and Translational Science |
| ISSN: | 2059-8661 |
| Popis: | The recipients of NIH’s Clinical and Translational Science Awards (CTSA) have worked for over a decade to build informatics infrastructure in support of clinical and translational research. This infrastructure has proved invaluable for supporting responses to the current COVID-19 pandemic through direct patient care, clinical decision support, training researchers and practitioners, as well as public health surveillance and clinical research to levels that could not have been accomplished without the years of ground-laying work by the CTSAs. In this paper, we provide a perspective on our COVID-19 work and present relevant results of a survey of CTSA sites to broaden our understanding of the key features of their informatics programs, the informatics-related challenges they have experienced under COVID-19, and some of the innovations and solutions they developed in response to the pandemic. Responses demonstrated increased reliance by healthcare providers and researchers on access to electronic health record (EHR) data, both for local needs and for sharing with other institutions and national consortia. The initial work of the CTSAs on data capture, standards, interchange, and sharing policies all contributed to solutions, best illustrated by the creation, in record time, of a national clinical data repository in the National COVID-19 Cohort Collaborative (N3C). The survey data support seven recommendations for areas of informatics and public health investment and further study to support clinical and translational research in the post-COVID-19 era. |
| Databáze: | OpenAIRE |
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