The development of service user-led recommendations for health and social care services on leaving hospital with memory loss or dementia - the SHARED study
| Autor: | Sue Boex, Jim Leach, Kate Seers, Rashida Suleman, Carole Mockford, Sophie Staniszewska, Yvonne Diment, Jan R. Oyebode, Richard Grant, Matt Murray, Uma Sharma, Rosemary Clarke |
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| Jazyk: | angličtina |
| Rok vydání: | 2017 |
| Předmět: |
Male
Social Work Health outcomes 03 medical and health sciences 0302 clinical medicine Nursing Hospital discharge Humans Medicine Dementia Service user 030212 general & internal medicine Acute hospital Aged lay co‐researchers Memory Disorders business.industry 030503 health policy & services Public Health Environmental and Occupational Health Continuity of Patient Care Focus Groups service user‐led recommendations medicine.disease Focus group Hospitals Patient Discharge Original Research Paper hospital discharge Care in the Community Caregivers England memory loss service provision Female Social care 0305 other medical science business Original Research Papers Stress Psychological RC |
| Zdroj: | Health Expectations : An International Journal of Public Participation in Health Care and Health Policy |
| ISSN: | 1369-6513 |
| Popis: | Background:\ud Health and social care services are under strain providing care in the community particularly at hospital discharge. Patient and carer experiences can inform and shape services.\ud \ud Objective:\ud To develop service user-led recommendations enabling smooth transition for people living with memory loss from acute hospital to community.\ud \ud Design:\ud Lead and co-researchers conducted semi-structured interviews with 15 pairs of carers and patients with memory loss at discharge, 6 and 12 weeks post-discharge and one semi-structured interview with health and social care professionals and Admiral Nurses. Framework analysis was guided by co-researchers. Two focus groups of study participants, facilitated by co-researchers, met to shape and finalize recommendations.\ud \ud Setting and participants:\ud Recruitment took place in acute hospitals in two National Health Service (NHS) Trusts in England. Patients were aged 65 and over, with memory loss, an in-patient for at least 1 week returning to the community, who had a carer consenting to be in the study.\ud \ud Results:\ud Poor delivery of services caused considerable stress to some study families living with memory loss. Three key recommendations included a need for a written, mutually agreed discharge plan, a named coordinator of services, and improved domiciliary care services.\ud \ud Discussion and conclusions:\ud Vulnerable patients with memory loss find coming out of hospital after an extended period a stressful experience. The SHARED study contributes to understanding the hospital discharge process through the eyes of the patient and carer living with memory loss and has the potential to contribute to more efficient use of resources and to improving health outcomes in communities. |
| Databáze: | OpenAIRE |
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