Experiences of Patient-Led Chronic Pain Peer Support Groups After Pain Management Programs: A Qualitative Study
| Autor: | Nicholas Ambler, Sareeta Vyas, Sue Watkins, Jeremy Horwood, Heather Brant, Myles-Jay Linton, Michelle Farr, Rita Patel, Hannah Wedge |
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| Rok vydání: | 2021 |
| Předmět: |
self-management
Coping (psychology) Co-Production media_common.quotation_subject peer support Peer support Peer Support Peer Group 03 medical and health sciences 0302 clinical medicine Nursing Original Research Articles Intervention (counseling) Agency (sociology) medicine Pain Management Programs Humans Pain Management 030212 general & internal medicine Special Populations Section Qualitative Research media_common Self-management business.industry Self-Management Chronic pain Social Support General Medicine medicine.disease Social Intervention co-production social intervention Self-Help Groups Friendship Anesthesiology and Pain Medicine pain management programmes Neurology (clinical) Chronic Pain chronic pain AcademicSubjects/MED00010 business 030217 neurology & neurosurgery Qualitative research |
| Zdroj: | Pain Medicine: The Official Journal of the American Academy of Pain Medicine Farr, M C, Brant, H D, Patel, R, Linton, M-J, Ambler, N, Vyas, S, Wedge, H, Watkins, S & Horwood, J P 2021, ' Experiences of Patient-Led Chronic Pain Peer Support Groups After Pain Management Programs : A qualitative study ', Pain Medicine, vol. 22, no. 12, pp. 2884-2895 . https://doi.org/10.1093/pm/pnab189 |
| ISSN: | 1526-4637 1526-2375 |
| DOI: | 10.1093/pm/pnab189 |
| Popis: | Objective A qualitative study of patients’ experiences and the impacts of peer support groups that patients maintained after UK NHS group pain management programs (PMPs). Design Long-term impacts of group PMPs remain unclear, with indications that positive effects can fade. We evaluated a model of continued peer support, co-produced by patients and clinicians, to maintain the therapeutic impact of PMP groups. A protocol was implemented that encouraged patients to continue to meet in their established PMP group for patient-led peer support (without clinical input) after PMPs finished. Peer support aimed to consolidate self-management, and advance social life recovery. We examined the impacts that groups had on attendees, and why some dropped out. Methods Semi-structured interviews with 38 patients and 7 clinicians, analyzed thematically. Results Friendship bonds and mutual understandings of effective ways of coping with pain encouraged participants to maintain recovery following PMPs. After PMP professional involvement has ended, these meetings enabled patients to develop greater agency from the shared sense of helping bring about new achievements or averting setbacks. Peer support extended the understanding of what is possible when living with pain. However, continuing meetings were not right for all. Reasons for not attending included lack of connection with peers. Conclusions Co-produced peer support groups after PMPs can be a low-cost, effective social intervention, providing emotional, practical and social benefits, with improved self-management skills, stronger social connections and some reduced use of health services. Project resources for developing peer support meetings after PMPs are freely available online. |
| Databáze: | OpenAIRE |
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