Radical collaboration during a global health emergency: Development of the RDA COVID-19 data sharing recommendations and guidelines
| Autor: | Amy Pienta, Alejandra Gonzalez-Beltran, Zoe Cournia, Francis P. Crawley, Leyla Jael Castro, Sridhar Gutam, Daniel Mietchen, Timea Biro, Ingvill C. Mochmann, Marcos Roberto Tovani-Palone, Claire C. Austin, Geta Mitrea, Simon Parker, Katherine McNeill, Minglu Wang, Louise Bezuidenhout, Carlos Casorran, Anupama Gururaj, Natalie Harrower, Jitendra Jonnagaddala, Panayiota Polydoratou, Alexander Bernier, Claudia Engelhardt, Kheeran Dharmawardena, Ingrid Dillo, Mary O'Brien-Uhlmansiek, Romain David, Rajini Nagrani, Brian Pickering, Gayo Diallo |
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| Přispěvatelé: | University of Oxford, Département d'Informatique [Bruxelles] (ULB), Faculté des Sciences [Bruxelles] (ULB), Université libre de Bruxelles (ULB)-Université libre de Bruxelles (ULB), European Research Infrastructure on Highly Pathogenic Agents (ERINHA-AISBL), Göttingen State and University Library (SUB Göttingen), Georg-August-University = Georg-August-Universität Göttingen, German Cancer Research Center - Deutsches Krebsforschungszentrum [Heidelberg] (DKFZ), Bordeaux population health (BPH), Université de Bordeaux (UB)-Institut de Santé Publique, d'Épidémiologie et de Développement (ISPED)-Institut National de la Santé et de la Recherche Médicale (INSERM), Data Archiving and Networked Services (DANS-KNAW), Royal Netherlands Academy of Arts and Sciences (KNAW), European Project: 824087,EOSC-Life |
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
medicine.medical_specialty
Knowledge management Coronavirus disease 2019 (COVID-19) data sharing global health epidemic pandemic COVID-19 Research Data Alliance public health radical collaboration 03 medical and health sciences [SDV.MHEP.MI]Life Sciences [q-bio]/Human health and pathology/Infectious diseases Collective identity Political science Global health medicine 030304 developmental biology [SDV.MHEP.ME]Life Sciences [q-bio]/Human health and pathology/Emerging diseases 0303 health sciences business.industry Public health 05 social sciences Articles General Medicine 3. Good health Data sharing Alliance Work (electrical) [SHS.GESTION]Humanities and Social Sciences/Business administration Survey data collection [SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie 0509 other social sciences 050904 information & library sciences business Research Article |
| Zdroj: | Open Research Europe Open Research Europe, 2021, 1, pp.69. ⟨10.12688/openreseurope.13369.1⟩ Open research Europe, 1:69 |
| ISSN: | 2732-5121 |
| Popis: | Background: The coronavirus disease 2019 (COVID-19) global pandemic required a rapid and effective response. This included ethical and legally appropriate sharing of data. The European Commission (EC) called upon the Research Data Alliance (RDA) to recruit experts worldwide to quickly develop recommendations and guidelines for COVID-related data sharing. Purpose: The purpose of the present work was to explore how the RDA succeeded in engaging the participation of its community of scientists in a rapid response to the EC request. Methods: A survey questionnaire was developed and distributed among RDA COVID-19 work group members. A mixed-methods approach was used for analysis of the survey data. Results: The three constructs of radical collaboration (inclusiveness, distributed digital practices, productive and sustainable collaboration) were found to be well supported in both the quantitative and qualitative analyses of the survey data. Other social factors, such as motivation and group identity were also found to be important to the success of this extreme collaborative effort. Conclusions: Recommendations and suggestions for future work were formulated for consideration by the RDA to strengthen effective expert collaboration and interdisciplinary efforts. |
| Databáze: | OpenAIRE |
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