Assessing parental attitudes toward genetic testing for childhood hearing loss: Before and after genetic consultation
| Autor: | Yuelin Li, Lisa J. Bain, Ian D. Krantz, Rachel Ewing, Dinah Yaeger, Ari Bieler, Annie G. Steinberg, Girija Kaimal |
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| Rok vydání: | 2007 |
| Předmět: |
Adult
Parents Health Knowledge Attitudes Practice Time Factors Adolescent Hearing loss Hearing Loss Sensorineural Genetic counseling Genetic Counseling Surveys and Questionnaires Genetics medicine Humans Genetic Testing Child Genetics (clinical) Genetic testing medicine.diagnostic_test business.industry Middle Aged Exploratory factor analysis Test (assessment) El Niño medicine.symptom Bilateral sensorineural hearing loss business Psychosocial Clinical psychology |
| Zdroj: | American Journal of Medical Genetics Part A. :1546-1553 |
| ISSN: | 1552-4833 1552-4825 |
| Popis: | We report on the development of a Genetic Attitude Assessment Tool (GAAT) to measure parental attitudes in contemplating genetic testing for childhood hearing loss, and to examine the differences in assessments made before and after genetic counseling. The GAAT tool was administered to a convenient sample of 119 parents of children with bilateral sensorineural hearing loss. The respondents completed the survey either before (n = 77) or after (n = 42) genetic counseling. Exploratory Factor Analysis was applied to identify and quantify the underlying psychosocial structure. Our results showed the validated 54-item GAAT instrument contains six subscales: (1) “test intention,” (2) “beliefs in non-genetic causes of hearing loss,” (3) “deferral of decision to undergo genetic testing,” (4) “appropriate use of genetic testing results,” (5) “beliefs in the benefits,” and (6) “concerns about stigma.” The respondents who answered the survey after genetic counseling had higher “test intention” (P = 0.017) and endorsed to a greater extent “beliefs in the benefits” (P |
| Databáze: | OpenAIRE |
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