Support needs of couples with hereditary breast and ovarian cancer during reproductive decision making
Autor: | Aad Tibben, Vivianne C. G. Tjan-Heijnen, C.E.M. de Die-Smulders, J.J.G. Gietel-Habets, Encarna B. Gomez-Garcia, R. van Golde, L.A.D.M. van Osch, I.A.P. Derks-Smeets |
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Přispěvatelé: | RS: GROW - R4 - Reproductive and Perinatal Medicine, Klinische Genetica, MUMC+: DA KG Polikliniek (9), RS: GROW - R3 - Innovative Cancer Diagnostics & Therapy, MUMC+: MA Medische Oncologie (9), Interne Geneeskunde, Obstetrie & Gynaecologie, MUMC+: MA Medische Staf Obstetrie Gynaecologie (9), RS: CAPHRI - R6 - Promoting Health & Personalised Care, Health promotion |
Rok vydání: | 2018 |
Předmět: |
0301 basic medicine
Male PERCEPTIONS INTENTIONS NETHERLANDS Decisional conflict preimplantation genetic diagnosis (PGD) 030105 genetics & heredity Carcinoma Ovarian Epithelial Conflict Psychological 0302 clinical medicine Pregnancy Marriage 030219 obstetrics & reproductive medicine BRCA mutation WOMEN CARRIERS Psychiatry and Mental health oncology Female Psychology Attitude to Health Adult medicine.medical_specialty Heterozygote PREIMPLANTATION GENETIC DIAGNOSIS Decision Making Experimental and Cognitive Psychology Breast Neoplasms Preimplantation genetic diagnosis Decision Support Techniques reproduction 03 medical and health sciences CHILDBEARING medicine cancer Humans ATTITUDES PRENATAL-DIAGNOSIS Data collection hereditary breast and ovarian cancer (HBOC) Social environment Regret Guideline Patient Acceptance of Health Care Focus group Cross-Sectional Studies Family medicine support needs |
Zdroj: | Psycho-Oncology, 27(7), 1795-1801. Wiley Psycho-Oncology, 27(7), 1795-1801 |
ISSN: | 1099-1611 1057-9249 1795-1801 |
Popis: | OBJECTIVE Reproductive decision making for couples with hereditary breast and ovarian cancer (HBOC) is complex and can result in decisional conflict or regret. This study investigated couples' support needs and aimed to identify vulnerable couples. Ultimately, we should strive to develop a clear standard of care guideline regarding reproductive decision support. METHODS Mixed methods were used for data collection. A focus group study was conducted among 18 couples (N = 35) with HBOC who had made a reproductive decision after reproductive counselling. Subsequently, 129 similar couples (N = 258) were invited to complete a cross-sectional survey based on the focus group study. RESULTS Clinical and practical aspects of reproductive counselling were positively evaluated in the focus group study, although couples indicated a need for additional support with emotional and social concerns in which their relationship, social environment, and the way they picture their desired family were key elements. The survey was completed by 86 participants. Making a reproductive choice was experienced as (very) difficult by 43%, and 69% showed a need for additional support during decision making. Younger participants and those who opted for a natural pregnancy experienced more difficulty with reproductive decision making, and partners showed a higher need for psychological support than carriers. CONCLUSIONS Couples with HBOC who need to make a reproductive decision have specific needs for guidance and support, of which the desired content and methods can vary. It is therefore important to identify vulnerable couples and to attune counselling to couples' needs. |
Databáze: | OpenAIRE |
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