International perspectives on sharing clinical data with patients
| Autor: | Sarah A. Collins, Fernanda Polubriaginof, David K. Vawdrey, Victoria L. Tiase, Gilad J. Kuperman, Jennifer E. Prey |
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| Rok vydání: | 2016 |
| Předmět: |
Internationality
Databases Factual 020205 medical informatics Health information technology International scale Best practice Health Informatics 02 engineering and technology Access to Information 03 medical and health sciences 0302 clinical medicine Clinical information 0202 electrical engineering electronic engineering information engineering Electronic Health Records Humans Medicine 030212 general & internal medicine Government Information Dissemination business.industry Ownership Perspective (graphical) Public relations Data science Maturity (finance) Cross-Sectional Studies Data access business |
| Zdroj: | International Journal of Medical Informatics. 86:135-141 |
| ISSN: | 1386-5056 |
| Popis: | Objective Engaging patients in their care has become a topic of increasing importance, and enabling patients to have access to their clinical data is a key aspect of such engagement. We investigated, on an international scale, the current state of approaches for providing patients with access to their own clinical information. Methods Individuals from 28 countries were invited to participate in a cross-sectional semi-structured interview. Interview questions focused on social and cultural influences that affected patient engagement activities, government support for current and planned initiatives, data ownership models, and technical issues. Results Interviews were conducted with individuals from 16 countries representing six continents. Respondents reported substantive initiatives for providing information to patients in the majority of countries interviewed. These initiatives were diverse in nature and stage of implementation. Discussion Enabling patient access to data is occurring on an international scale. There is considerable variability in the level of maturity, the degree of government involvement, the technical infrastructure, and the plans for future development across the world. As informaticians, we are still in the early stages of deploying patient engagement technologies and have yet to identify optimal strategies in this arena. Conclusion Efforts to improve patient access to data are active on a global-scale. There are many open questions about best practices and much can be learned by adopting an international perspective to guide future implementation efforts. |
| Databáze: | OpenAIRE |
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