Health-Related Quality of Life Declines Over 3 Years for Congenital Heart Disease Survivors
| Autor: | Jamie L. Jackson, Jennifer DeSalvo, Joseph Rausch, Carine E Leslie |
|---|---|
| Rok vydání: | 2020 |
| Předmět: |
Adult
Heart Defects Congenital Longitudinal study Heart disease Adolescent MEDLINE 030204 cardiovascular system & hematology Family income Article 03 medical and health sciences Young Adult 0302 clinical medicine Quality of life medicine Humans 030212 general & internal medicine Longitudinal Studies Survivors Young adult Child Advanced and Specialized Nursing business.industry Medical record medicine.disease Confidence interval Cross-Sectional Studies Quality of Life Cardiology and Cardiovascular Medicine business Demography |
| Zdroj: | J Cardiovasc Nurs |
| ISSN: | 1550-5049 |
| Popis: | Background Because of medical advancements, many congenital heart disease (CHD) survivors are relatively symptom-free until adulthood, at which time complications may occur. Worsening health status likely drives a change in patient-reported outcomes, such as health-related quality of life (HRQoL), although change in HRQoL has not been investigated among adolescent and young adult CHD survivors. Objective The aims of the current mixed cross-sectional and longitudinal study were to (1) examine changes in HRQoL over 3 years and (2) identify any demographic (age, sex, estimated family income, and distance from medical center) and medical predictors (functional status and number of cardiac-related medications) of that change. Methods Baseline and 3-year follow-up data were obtained via an online survey of 172 CHD survivors (15-39 years old at baseline; 25% simple, 45% moderate, 30% complex) recruited from a pediatric hospital and an adult hospital. Medical predictors were abstracted from electronic medical records. Results After controlling for New York Heart Association functional class, mixed-effects models identified significant declines in all subscales of the Research and Development Corporation 36-Item Health Survey 1.0 across the 3-year timeframe. A lower estimated family income (≤$35 000) predicted more decline in physical functioning (b = 0.5, 95% confidence interval, 0.2-0.8; P = .001) and emotional functioning (b = 0.3, 95% confidence interval, 0.1-0.5; P = .017). No other significant demographic or medical predictors were identified. Conclusions Study findings highlight the importance of tracking patient-reported outcomes over time, suggesting that medical staff should discuss HRQoL with CHD survivors during late adolescence and early adulthood before decline. |
| Databáze: | OpenAIRE |
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