The National Institute on Disability and Rehabilitation Research burn model system database: a tool for the multicenter study of the outcome of burn injury
| Autor: | Karen J. Kowalske, James A. Fauerbach, Gretchen J. Carrougher, Peter C. Esselman, Radha K. Holavanahalli, Matthew B. Klein, David N. Herndon, Barbara J. deLateur, Loren H. Engrav, Theresa B. San Agustin, D L. Lezotte |
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| Rok vydání: | 2007 |
| Předmět: |
Adult
Employment Male medicine.medical_specialty Burn injury Financing Government Adolescent medicine.medical_treatment Burn Units Psychological intervention Poison control computer.software_genre Database design Occupational safety and health Age Distribution Government Agencies Injury Severity Score Risk Factors Surveys and Questionnaires Injury prevention Outcome Assessment Health Care Medicine Humans Sex Distribution Child Aged Rehabilitation Insurance Health Database business.industry Data Collection Middle Aged United States Databases as Topic Child Preschool Emergency Medicine Physical therapy Educational Status Surgery Female business Burns Psychosocial computer |
| Zdroj: | Journal of burn careresearch : official publication of the American Burn Association. 28(1) |
| ISSN: | 1559-047X |
| Popis: | Advances in critical care and surgical management have significantly improved survival after burn injury over the past several decades. However, today, survival alone is an insufficient outcome. In 1994, the National Institute on Disability and Rehabilitation Research (NIDRR) created a burn model system program to evaluate the long-term sequelae of burn injuries. As part of this multicenter program, a comprehensive demographic and outcome database was developed to facilitate the study of a number of functional and psychosocial outcomes after burns. The purpose of this study is to review the database design and structure as well as the data obtained during the last 10 years. This is a descriptive study of the NIDRR database structure as well as the patient data obtained from the four participating burn centers from 1994 to 2004. Data obtained during hospitalization and at 6, 12, and 24 months after discharge were reviewed and descriptive statistics were calculated for select database fields. The database is divided into several subsections, including demographics, injury complications, patient disposition, and functional and psychological surveys. A total of 4600 patients have been entered into the NIDRR database. To date, 3449 (75%) patients were alive at discharged and consented to follow-up data collection. The NIDRR database provides an expansive repository of patient, injury, and outcome data that can be used to analyze the impact of burn injury on physical and psychosocial function and for the design of interventions to enhance the quality of life of burn survivors. |
| Databáze: | OpenAIRE |
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