Are family factors universally related to metabolic outcomes in adolescents with Type 1 diabetes?
| Autor: | Henrik B. Mortensen, Hilary Hoey, Tatsuhiko Urakami, Harry Dorchy, Pål R. Njølstad, Mirjana Kocova, E. J. Schoenle, Dennis Daneman, Eero A. Kaprio, Kenneth Robertson, Peter G.F. Swift, Jan Åman, Maurizio Vanelli, C De Beaufort, Francine R. Kaufman, Thomas Danne, Fergus J. Cameron, Soren E. Skovlund, Francesco Chiarelli, Moshe Phillip, Henk-Jan Aanstoot, R.W. Ackermann, Timothy Skinner, Pedro Martul |
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| Přispěvatelé: | University of Groningen |
| Jazyk: | angličtina |
| Rok vydání: | 2008 |
| Předmět: |
INVOLVEMENT
Blood Glucose Male Endocrinology Diabetes and Metabolism medicine.medical_treatment YOUNG-PEOPLE CHILDREN MELLITUS Endocrinology Quality of life GLYCEMIC CONTROL Surveys and Questionnaires adolescents Parent-Child Relations PREDICTORS Child Research Support Non-U.S. Gov't families Multicenter Study Type 1 diabetes Treatment Outcome Female INTERVENTION medicine.medical_specialty Diabetic ketoacidosis Adolescent Concordance TEAMWORK Diabetes mellitus Internal medicine Internal Medicine medicine MANAGEMENT Journal Article Humans business.industry Insulin Blood Glucose Self-Monitoring CARE Patient Acceptance of Health Care medicine.disease Obesity Diabetes Mellitus Type 1 Family medicine Metabolic control analysis Quality of Life business |
| Zdroj: | Cameron, F J, Skinner, T C, de Beaufort, C E, Hoey, H, Swift, P G F, Aanstoot, H, Aman, J, Martul, P, Chiarelli, F, Daneman, D, Danne, T, Dorchy, H, Kaprio, E A, Kaufman, F, Kocova, M, Mortensen, H B, Njølstad, P R, Phillip, M, Robertson, K J, Schoenle, E J, Urakami, T, Vanelli, M, Ackermann, R W, Skovlund, S E & Hvidoere Study Group on Childhood Diabetes 2008, ' Are family factors universally related to metabolic outcomes in adolescents with Type 1 diabetes? ', Diabetic Medicine Online, vol. 25, no. 4, pp. 463-8 . https://doi.org/10.1111/j.1464-5491.2008.02399.x Diabetic Medicine, 25(4), 463-468. Wiley |
| ISSN: | 0742-3071 |
| Popis: | AIMS: To assess the importance of family factors in determining metabolic outcomes in adolescents with Type 1 diabetes in 19 countries.METHODS: Adolescents with Type 1 diabetes aged 11-18 years, from 21 paediatric diabetes care centres, in 19 countries, and their parents were invited to participate. Questionnaires were administered recording demographic data, details of insulin regimens, severe hypoglycaemic events and number of episodes of diabetic ketoacidosis. Adolescents completed the parental involvement scale from the Diabetes Quality of Life for Youth--Short Form (DQOLY-SF) and the Diabetes Family Responsibility Questionnaire (DFRQ). Parents completed the DFRQ and a Parental Burden of Diabetes score. Glycated haemoglobin (HbA(1c)) was analysed centrally on capillary blood.RESULTS: A total of 2062 adolescents completed a questionnaire, with 2036 providing a blood sample; 1994 parents also completed a questionnaire. Family demographic factors that were associated with metabolic outcomes included: parents living together (t = 4.1; P < 0.001), paternal employment status (F = 7.2; d.f. = 3; P < 0.001), parents perceived to be over-involved in diabetes care (r = 0.11; P < 0.001) and adolescent-parent disagreement on responsibility for diabetes care practices (F = 8.46; d.f. = 2; P < 0.001). Although these factors differed between centres, they did not account for centre differences in metabolic outcomes, but were stronger predictors of metabolic control than age, gender or insulin treatment regimen.CONCLUSIONS: Family factors, particularly dynamic and communication factors such as parental over-involvement and adolescent-parent concordance on responsibility for diabetes care appear be important determinants of metabolic outcomes in adolescents with diabetes. However, family dynamic factors do not account for the substantial differences in metabolic outcomes between centres. |
| Databáze: | OpenAIRE |
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