A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
| Autor: | Norlissa Cooper, Schyneida Williams, Anastasia Y. Gordon, Baylee De Castro, Larry Rand, Linda S. Franck, Shanell Williams, Monica R. McLemore |
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| Rok vydání: | 2018 |
| Předmět: |
Research design
Native Hawaiian or Other Pacific Islander General Chemical Engineering Reproductive health and childbirth Women of color Low Birth Weight and Health of the Newborn California 0302 clinical medicine Pregnancy Infant Mortality Psychology 030212 general & internal medicine uncertainty Minority Groups African Americans Pediatric 030219 obstetrics & reproductive medicine Priority setting patient engagement General Neuroscience patient and public involvement Hispanic or Latino Issue 131 Oceanic Ancestry Group Research Design Premature birth Premature Birth Cognitive Sciences Female Hispanic Americans medicine.medical_specialty MEDLINE General Biochemistry Genetics and Molecular Biology 03 medical and health sciences Clinical Research Preterm medicine Humans Protocol (science) Behavior research Asian General Immunology and Microbiology business.industry Infant Newborn Infant Preterm birth Perinatal Period - Conditions Originating in Perinatal Period Newborn medicine.disease Public involvement patient empowerment Black or African American Good Health and Well Being Asian Americans Family medicine Biochemistry and Cell Biology business |
| Zdroj: | Journal of Visualized Experiments : JoVE Franck, LS; McLemore, MR; Cooper, N; De Castro, B; Gordon, AY; Williams, S; et al.(2018). A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting. JOVE-JOURNAL OF VISUALIZED EXPERIMENTS, (131). doi: 10.3791/56220. UCSF: Retrieved from: http://www.escholarship.org/uc/item/3bc5s69h Journal of visualized experiments : JoVE, vol 2018, iss 131 |
| ISSN: | 1940-087X |
| DOI: | 10.3791/56220 |
| Popis: | Involvement of patients and the public is now recognized to be essential for the good conduct of research. Patient and public involvement in research priority setting and funding decisions is only beginning to be recognized as important, and methods for doing so are nascent. This protocol describes the Research Prioritization by Affected Communities (RPAC) protocol and findings from its use with women at high socio-demographic risk for preterm birth. The goal was to directly involve these women in identifying and prioritizing their unanswered questions about pregnancy, birth and neonatal care, and treatment so that their views could be included in research priority setting by funders and researchers. The RPAC protocol may be used to meaningfully involve under-represented groups at high-risk for specific health problems, or those who face disproportionate burden of disease, in research strategy and funding priority setting. |
| Databáze: | OpenAIRE |
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