The Nigeria Parkinson Disease Registry: Process, Profile, and Prospects of a Collaborative Project
| Autor: | Abiodun J. Kehinde, Olajumoke Oshinaike, Shyngle I. Oyakhire, SA Abubakar, Charles O. Achoru, Abiodun H Bello, Akintunde A Adebowale, Ernest O. Nwazor, Godwin Osaigbovo, Lukman Owolabi, Nosakhare Osemwegie, Emmanuel E. Obehighe, Frank Aiwansoba Imarhiagbe, Paul Olowoyo, Kolawole Wahab, Cyril O. Erameh, Musbahu Rabiu, Yakub Wilberforce Nyandaiti, Temitope Farombi, Oluwadamilola O. Ojo, Cosmas M. Nwosu, Salisu A. Balarabe, Gerald A. Onwuegbuzie, Oladunni V. Abiodun, Funlola T. Taiwo, O. S. Ekenze, Alagoma Iyagba, Babatunde Ademiluyi, Olaleye Adeniji, Ohwotemu Arigbodi, Morenikeji Komolafe, Bertha C. Ekeh, Yahaya Obiabo, Paul O Nwani, John E. Akpekpe, Franklin O Dike, E U Iwuozo, Olanike A. Odeniyi, Folajimi M. Otubogun, Osigwe P. Agabi, Babawale Arabambi, Christian E. Agu, Ifeyinwa Ani-Osheku, U. E. Williams, Mie Rizig, Njideka U Okubadejo, Yusuf A. Zubair, Francis E Odiase, Mohammed W. Ali, Michael B. Fawale, Rufus Akinyemi, Emmanuel N. Chapp‐Jumbo |
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| Rok vydání: | 2020 |
| Předmět: |
Male
0301 basic medicine medicine.medical_specialty Parkinson's disease Quality management Nigeria Disease 03 medical and health sciences 0302 clinical medicine Disease registry Interquartile range medicine Humans Registries Family history Africa South of the Sahara business.industry Capacity building Parkinson Disease Benchmarking medicine.disease United Kingdom 030104 developmental biology Neurology Family medicine Female Neurology (clinical) business 030217 neurology & neurosurgery |
| Zdroj: | Movement Disorders. 35:1315-1322 |
| ISSN: | 1531-8257 0885-3185 |
| DOI: | 10.1002/mds.28123 |
| Popis: | BACKGROUND Clinical disease registries are useful for quality improvement in care, benchmarking standards, and facilitating research. Collaborative networks established thence can enhance national and international studies by generating more robust samples and credible data and promote knowledge sharing and capacity building. This report describes the methodology, baseline data, and prospects of the Nigeria Parkinson Disease Registry. METHODS This national registry was established in November 2016. Ethics approval was obtained for all sites. Basic anonymized data for consecutive cases fulfilling the United Kingdom Parkinson's Disease Brain Bank criteria (except the exclusion criterion of affected family members) are registered by participating neurologists via a secure registry website (www.parkinsonnigeria.com) using a minimal common data capture format. RESULTS The registry had captured 578 participants from 5 of 6 geopolitical zones in Nigeria by July 2019 (72.5% men). Mean age at onset was 60.3 ± 10.7 years; median disease duration (interquartile range) was 36 months (18-60.5 months). Young-onset disease ( |
| Databáze: | OpenAIRE |
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