What is a good death? Terminally ill patients dealing with normative expectations around death and dying
| Autor: | M. Goldsteen, Cor Spreeuwenberg, Ireen M. Proot, Guy Widdershoven, Rob Houtepen, Huda Huijer Abu-Saad |
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| Přispěvatelé: | Ethics, Law & Medical humanities, APH - Aging & Later Life, APH - Quality of Care, CCA - Cancer Treatment and quality of life |
| Rok vydání: | 2005 |
| Předmět: |
Adult
Male Palliative care Attitude to Death Social Values Attitude of Health Personnel media_common.quotation_subject Terminally ill Nursing Methodology Research Patient Advocacy Choice Behavior Neoplasms Surveys and Questionnaires Adaptation Psychological Medicine Humans Terminally Ill Family Open communication Qualitative Research media_common Aged Netherlands Aged 80 and over Terminal Care business.industry Communication Social Support General Medicine Awareness Middle Aged Caregivers Life expectancy Normative Female business Social psychology Good death Attitude to Health Needs Assessment Diversity (politics) |
| Zdroj: | Goldsteen, M, Houtepen, R, Proot, I M, Abu-Saad, H H, Spreeuwenberg, C & Widdershoven, G 2006, ' What is a good death? Terminally ill patients dealing with normative expectations around death and dying ', Patient Education and Counseling, vol. 64, no. 1-3, pp. 378-386 . https://doi.org/10.1016/j.pec.2006.04.008 Patient Education and Counseling, 64(1-3), 378-386. Elsevier Ireland Ltd |
| ISSN: | 0738-3991 |
| Popis: | Objective Developing good care for dying people is important nowadays. Normative expectations about what could be considered as a good death are inextricably bound up with this issue. This article aims to offer an insight in the way terminally ill patients talk about death and dying and how they refer to current western normative expectations about a ’good’ death. Method Thirteen patients with a life expectancy of less than 3 months living at home were interviewed about how they experienced the last phase of their lives. The analysis focused on the way patients tell their personal stories by using normative expectations that are part of a broader cultural western framework. Results Five categories of normative expectations were discriminated in the stories of patients: awareness and acceptance, open communication, living one's life till the end, taking care of one's final responsibilities and dealing adequately with emotions. Conclusions The results of this study show that in the search of a good death people show a clear diversity in their way of referring to as well as in dealing with normative expectations that are part of the current cultural paradigm. Practice implications Professional caregivers should be responsive to how a patient deals with and relates to normative expectations about a good death and should support patients in their individual process of dying an ‘appropriate death’. |
| Databáze: | OpenAIRE |
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