A novel approach in pediatric telegenetic services: geneticist, pediatrician and genetic counselor team
| Autor: | G B Schaefer, Siddharthan Sivamurthy, Shobana Kubendran |
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| Jazyk: | angličtina |
| Rok vydání: | 2017 |
| Předmět: |
0301 basic medicine
Medical home Telemedicine Pediatrics medicine.medical_specialty pediatrics Service delivery framework Genetic counseling MEDLINE Collaborative Care 030105 genetics & heredity Health Services Accessibility 03 medical and health sciences 0302 clinical medicine Patient satisfaction genetic service model Clinical Protocols 030225 pediatrics medical home medicine Original Research Article Pediatricians Physician's Role telegenetics Genetics (clinical) Patient Care Team genetic counseling business.industry Delivery of Health Care Integrated Genetic Services Geneticist Patient Satisfaction Family medicine Models Organizational business |
| Zdroj: | Genetics in Medicine |
| ISSN: | 1530-0366 1098-3600 |
| Popis: | Purpose Our aim was to improve access to genetic services in an underserved region by developing a collaborative telegenetic service delivery model with a pediatrician, medical geneticist, and genetics counselor (GC). Methods Protocols for the evaluation of common genetic indications were developed. Patients referred with indications suggestive of a syndromic etiology were scheduled to see the geneticist directly via telegenetics. Other patients were scheduled to see the pediatrician and GC in person before follow-up with the geneticist if indicated. Patients seen by the geneticist and/or pediatrician/GC were enumerated and the next available appointment was tracked. Patient satisfaction surveys were conducted. Results Of the 265 patients evaluated during the study period, 116 (44%) were evaluated by a pediatrician and GC in person first, after which 82 (71% of those evaluated) required further follow-up with the geneticist. The next available appointment with a pediatrician and GC never exceeded 6 weeks, while new appointments with a geneticist ranged from 3 to 9 months. All patients reported high satisfaction with this genetic service model. Conclusion The pediatrician/GC clinic provides a model of collaborative care that is a medical home neighbor and exemplifies the integration of genetics into primary care. The telegenetics clinic offers a viable solution to providing competent and convenient access to a geneticist for patients in chronically underserved regions. |
| Databáze: | OpenAIRE |
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