Meet and eat, an interdisciplinary group intervention for patients with myotonic dystrophy about healthy nutrition, meal preparation, and consumption: a feasibility study
| Autor: | Jan T. Groothuis, Heleen Dicke, S. Knuijt, Suzanne G. M. van Hees, Joost Raaphorst, Edith H. C. Cup, Ton Satink |
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| Přispěvatelé: | Neurology |
| Rok vydání: | 2020 |
| Předmět: |
Gerontology
Next of kin business.industry media_common.quotation_subject Rehabilitation Drinking Motivational interviewing Embarrassment Peer support medicine.disease Disorders of movement Donders Center for Medical Neuroscience [Radboudumc 3] Myotonic dystrophy Health promotion All institutes and research themes of the Radboud University Medical Center Intervention (counseling) Feasibility Studies Humans Myotonic Dystrophy Medicine Family Meal preparation Diet Healthy business media_common |
| Zdroj: | Disability and Rehabilitation, 42, 11, pp. 1561-1568 Disability and rehabilitation. Informa Healthcare Disability and Rehabilitation, 42, 1561-1568 |
| ISSN: | 0963-8288 |
| Popis: | Purpose: To develop and evaluate an interdisciplinary group intervention for patients with myotonic dystrophy regarding healthy nutrition, meal preparation, and consumption, called Meet and Eat. Materials and methods: A design-based approach was used, exploring experiences and needs of patients with myotonic dystrophy and their next of kin. This resulted in a 4-week interdisciplinary outpatient group intervention to increase awareness and change behavior. In a mixed-method feasibility study this intervention was evaluated with participants and facilitators. Results: Participants reported on social impact of difficulties with eating and drinking (speaking, swallowing, and social embarrassment) and a variety of complaints affecting meal preparation and consumption. Patients and family members expressed the wish to learn from others. After delivery of the intervention, self-reported outcome measures demonstrated improvement on eating and drinking issues in daily life. The qualitative evaluation showed increased awareness and appreciation of the following design principles: peer support, multidisciplinary approach, active involvement of patient with myotonic dystrophy and their next of kin by using personal goals and motivational interviewing. Conclusion: Participation in Meet and Eat seemed to increase insight in patients’ condition and ways of management. However, a longer self-management life style program is recommended to change behavior.Implications for rehabilitation Patients with myotonic dystrophy experience physical, cognitive and psychosocial problems to manage healthy nutrition, meal preparation, and consumption; This multidisciplinary group intervention Meet and Eat in patients with myotonic dystrophy appears to be feasible and seems to result in increased insight and management strategies; Peer support, multidisciplinary approach, personal goals, and involvement of family were key factors; To change eating and drinking behavior, a 4-week intervention is too short. |
| Databáze: | OpenAIRE |
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