Characterizing Enrollment in Observational Studies of Duchenne Muscular Dystrophy by Race and Ethnicity
| Autor: | Alison M. Barnard, Glenn A. Walter, Krista Vandenborne, Amber M. Angell, Samuel L. Riehl, Rebecca J. Willcocks |
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| Rok vydání: | 2020 |
| Předmět: |
0301 basic medicine
Duchenne muscular dystrophy Ethnic group Article White People 03 medical and health sciences Race (biology) 0302 clinical medicine Cultural diversity Humans Medicine Minority Health Healthcare Disparities business.industry Patient Selection Hispanic or Latino medicine.disease Black or African American Muscular Dystrophy Duchenne Natural history Observational Studies as Topic 030104 developmental biology Neurology Bibliometrics Research studies Observational study Neurology (clinical) business Inclusion (education) 030217 neurology & neurosurgery Demography |
| Zdroj: | J Neuromuscul Dis |
| ISSN: | 2214-3602 2214-3599 |
| DOI: | 10.3233/jnd-190447 |
| Popis: | Observational research benefits from inclusion of diverse cohorts. To characterize racial and ethnic diversity in observational and natural history research studies of Duchenne muscular dystrophy (DMD), highly cited and influential observational studies were identified. Fourteen United States-based articles were included. All studies cited >70% White participants with the majority having few racial minority participants. Enrollment of Black/African American individuals was particularly limited ( |
| Databáze: | OpenAIRE |
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