Amplifying Their Voices: Advice, Guidance, and Perceived Value of Cancer Biobanking Research Among an Older, Diverse Cohort
Autor: | Altovise Ewing, Ahmed Elmi, Arlener D. Turner, Kwame S. Sakyi, Jimmie L. Slade, Jean G. Ford, Michele Towson, Lori H. Erby, Adrian S. Dobs |
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Rok vydání: | 2020 |
Předmět: |
Gerontology
Value (ethics) Community-Based Participatory Research Biomedical Research Axial coding Pharmacology toxicology Participatory action research Article 03 medical and health sciences 0302 clinical medicine Neoplasms Humans Medicine 030212 general & internal medicine Gift card Aged Biological Specimen Banks business.industry Public Health Environmental and Occupational Health Precision medicine Biobank Research Personnel Oncology 030220 oncology & carcinogenesis Cohort business |
Zdroj: | J Cancer Educ |
ISSN: | 1543-0154 0885-8195 |
Popis: | The use of biobanks may accelerate scientists’ chances of developing cures and treatments that are tailored to individuals’ biological makeup-a function of the precision medicine movement. However, given the underrepresentation of certain populations in biobanks, the benefits of these resources may not be equitable for all groups, including older, multi-ethnic populations. The objective of this study was to better understand older, multi-ethnic populations’ 1) perceptions of the value of cancer biobanking research, 2) study design preferences and 3) guidance on ways to promote and increase participation. This study was designed using a community-based participatory research (CBPR) approach and involved eight FGDs with 67 older (65–74 years old) black and white residents from Baltimore City and Prince George’s County, Maryland. FGDs lasted between 90 and 120 minutes, and participants received a $25 Target gift card for their participation. Analysis involved an inductive approach in which we went through a series of open and axial coding techniques to generate themes and subthemes. Multiple themes emerged from the FGDs for the development of future cancer-related biobanking research including: 1) expectations/anticipated benefits, 2) biobanking design preferences and 3) ways to optimize participation. Overall, most participants were willing to provide biospecimens and favored cancer-related biobank. To increase participation of older, diverse participants in biobanking protocols, researchers need to engage older, diverse persons as consultants in order to better understand the value of biobanking research to individuals from the various populations. Scientists should also incorporate suggestions from the community on garnering trust and increasing comfort with study design. |
Databáze: | OpenAIRE |
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