A self-scaling, distributed information architecture for public health, research, and clinical care
| Autor: | Ben Y. Reis, Clint A. Gilbert, Andrew J. McMurry, Kenneth D. Mandl, Henry C. Chueh, Isaac S. Kohane |
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| Rok vydání: | 2007 |
| Předmět: |
Gerontology
medicine.medical_specialty Knowledge management Medical Records Systems Computerized National Health Programs Health information technology Information architecture media_common.quotation_subject Health Informatics Disease Outbreaks Computer Communication Networks Computer Systems medicine Humans Model Formulation Clinical care Architecture media_common Public Health Informatics business.industry Public health Transparency (behavior) United States Variable (computer science) Population Surveillance Medical Record Linkage business Autonomy Software Information Systems |
| Zdroj: | Journal of the American Medical Informatics Association : JAMIA. 14(4) |
| ISSN: | 1067-5027 |
| Popis: | Objective: This study sought to define a scalable architecture to support the National Health Information Network (NHIN). This architecture must concurrently support a wide range of public health, research, and clinical care activities. Study Design: The architecture fulfils five desiderata: (1) adopt a distributed approach to data storage to protect privacy, (2) enable strong institutional autonomy to engender participation, (3) provide oversight and transparency to ensure patient trust, (4) allow variable levels of access according to investigator needs and institutional policies, (5) define a self-scaling architecture that encourages voluntary regional collaborations that coalesce to form a nationwide network. Results: Our model has been validated by a large-scale, multi-institution study involving seven medical centers for cancer research. It is the basis of one of four open architectures developed under funding from the Office of the National Coordinator of Health Information Technology, fulfilling the biosurveillance use case defined by the American Health Information Community. The model supports broad applicability for regional and national clinical information exchanges. Conclusions: This model shows the feasibility of an architecture wherein the requirements of care providers, investigators, and public health authorities are served by a distributed model that grants autonomy, protects privacy, and promotes participation. |
| Databáze: | OpenAIRE |
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