Sickle cell disease: an opportunity for palliative care across the life span
| Autor: | Richard J. Labotka, Diana J. Wilkie, A. Kyle Mack, Bonnye Johnson, Robert E. Molokie |
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| Rok vydání: | 2010 |
| Předmět: |
Advance care planning
Adult Male medicine.medical_specialty Palliative care Disease Anemia Sickle Cell Article Advance Care Planning Quality of life (healthcare) Ambulatory care Health care Adaptation Psychological Medicine Humans Pain Management Disease management (health) Intensive care medicine Psychiatry General Nursing Curative care business.industry Palliative Care Disease Management Middle Aged Models Theoretical Female business Bereavement |
| Zdroj: | The Nursing clinics of North America. 45(3) |
| ISSN: | 1558-1357 |
| Popis: | Sickle cell disease is a chronic illness that impacts patients physically and emotionally and can do so at an early age. An ecological model of palliative care that involves improved communication among the health care team, patients, and their families can be beneficial. Open and honest communication regarding advance care planning, disease management, relief of pain and other symptoms, and bereavement and grief are all important for the patient, family, and health care team. Given the multiple acute and chronic complications of sickle cell disease, an approach to care that is holistic and comprehensive may help to improve a patient’s biological function and the perceived health, functional status, and quality of life of the patient and family. |
| Databáze: | OpenAIRE |
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