Familial Mediterranean fever: Health-related quality of life and associated variables in a national cohort
| Autor: | Sami Hizmetli, Gülcan Gürer, Fatma Gül Yurdakul, Hüseyin Kaplan, Mehmet Tuncay Duruöz, Gökhan Çağlayan, Hasan Fatih Çay, Yaşar Keskin, Ahmet Kıvanç Cengiz, Duygu Altıntaş, Nesrin Şen, Ülkü Uçar, Ali Yavuz Karahan, Zafer Günendi, Banu Sarifakioğlu, Şebnem Ataman, Ali Demir, Remzi Çevik, Meltem Alkan Melikoğlu, Yildiray Aydin, Mehmet Nayimoğlu, Hülya Deveci, Hilal Ecesoy, Ilhan Sezer, Betul Sargin, Ozan Volkan Yurdakul, Hatice Bodur, Kemal Nas, Murat Toprak, Sertaç Ketenci, Mustafa Çaliş |
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| Přispěvatelé: | KESKİN, Yaşar |
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Scale (ratio)
Autoinflammatory diseases Familial Mediterranean fever Anxiety Hospital Anxiety and Depression Scale Severity Rheumatology Quality of life Medicine Prospective cohort study Functional illiteracy Children HEALTH RELATED QUALITY OF LIFE AND ASSOCIATED VARIABLES IN A NATIONAL COHORT- Uluslararası Katılımlı Türk Romatoloji Kongrersi 2020 Türkiye 13 - 15 Kasım 2020 [BODUR H. YURDAKUL F. G. DURUÖZ M. T. ÇAY H. F. UÇAR Ü. KESKİN Y. SARGIN B. GÜRER G. YURDAKUL O. V. ÇALIŞ M. et al. -FAMILIAL MEDITERRANEAN FEVER] business.industry Scores Assessment Questionnaire Mdhaq medicine.disease autoinflammatory diseases life quality humanities Health assessment Test score depression Original Article fatigue business hereditary Demography |
| Zdroj: | Archives of Rheumatology |
| Popis: | Objectives: This study aims to evaluate the effectivity of Familial Mediterranean Fever Quality of Life (FMF-QoL) Scale for the measurement of QoL in patients with FMF and to perform correlations between related clinical variables in Turkish patients. Patients and methods: This multicenter prospective study performed between December 2017 and November 2018 included 974 FMF patients (334 males, 640 females; median age: 35; range, 26 to 45 years). Sociodemographic characteristics and clinical features were recorded. All participants were asked to complete the FMF-QoL Scale, Short Form-36 (SF-36), Hospital Anxiety and Depression Scale (HADS), Health Assessment Questionnaire (HAQ), and Functional Assessment of Chronic Illness Therapy (FACIT) Scale. Results: The median FMF-QoL Scale score was 26. Higher FMF-QoL Scale scores were shown to be related to female sex, illiteracy or primary education, monthly low-income (US$20 years), a higher number of attacks per month (>1/month), and severe disease. FMF-QoL Scale scores were correlated negatively with subscales of SF-36, and positively with HADS-anxiety and HADS-depression scores, HAQ and FACIT. Conclusion: Female sex, smoking, lower educational status, more severe disease, fatigue, and functional impairment were associated with poor QoL. FMF-QoL Scale was noted as a valid and simple patient-reported outcome instrument and correlated with the SF-36 scale. |
| Databáze: | OpenAIRE |
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