Participation seven years after severe childhood traumatic brain injury
| Autor: | Anne Laurent-Vannier, Georges Dellatolas, Laurence Watier, Mathilde Chevignard, Dominique Brugel, Hugo Câmara-Costa, Leila Francillette, Philippe Meyer, H. Toure, M. Opatowski |
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| Přispěvatelé: | Centre de recherche en épidémiologie et santé des populations (CESP), Université de Versailles Saint-Quentin-en-Yvelines (UVSQ)-Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Hôpital Paul Brousse-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université Paris-Saclay, Laboratoire d'Imagerie Biomédicale (LIB), Institut National de la Santé et de la Recherche Médicale (INSERM)-Sorbonne Université (SU)-Centre National de la Recherche Scientifique (CNRS), Biostatistique, Biomathématique, Pharmacoépidémiologie et Maladies Infectieuses (B2PHI), Université de Versailles Saint-Quentin-en-Yvelines (UVSQ)-Institut Pasteur [Paris]-Institut National de la Santé et de la Recherche Médicale (INSERM), Service de Rééducation des pathologies neurologiques acquises de l'enfant [Hôpitaux de Saint Maurice], Hôpitaux de Saint Maurice (HNSM), CHU Necker - Enfants Malades [AP-HP], Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP), Université de Paris - UFR Médecine Paris Centre [Santé] (UP Médecine Paris Centre), Université de Paris (UP), AOM 03018, The initial data collection for the initiation of the cohort study was funded by the D?partement de la Recherche Clinique et du Developpement, AP-HP (Paris, No. PHRC 2003, AOM 03018). In depth analyses and manuscript preparation were funded thanks to a co-funding by the French Ministry of Health?s general direction of health and direction of research, studies, assessment and statistics, by the national fund for health insurance of salaried workers, the national fund for health insurance of independent workers, by the national fund for solidarity and autonomy and by the national institute for prevention and education for health, in the call for research projects launched by the IReSP in 2011, and by two grants awarded to Hugo C?mara-Costa: one grant from the French Speaking Society of Research in Children with Disabilities (SFERHE, www.sferhe.org) and one joint grant from the French Traumatic Brain Injury Society (France Traumatisme Cr?nien?FTC) and the French Speaking Society of Physical Medicine and Rehabilitation (SOFMER, www.sofmer.com). The authors wish to thank Doctor Fr?d?ric Courage for his valuable help in the recruitment of the control participants., Laboratoire d'Imagerie Biomédicale [Paris] (LIB), Université de Versailles Saint-Quentin-en-Yvelines (UVSQ)-Institut Pasteur [Paris] (IP)-Institut National de la Santé et de la Recherche Médicale (INSERM), UFR Médecine [Santé] - Université Paris Cité (UFR Médecine UPCité), Université Paris Cité (UPCité), HAL UVSQ, Équipe, Université Paris Cité - UFR Médecine [Santé] (UPCité UFR Médecine) |
| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
Male
030506 rehabilitation medicine.medical_specialty Adolescent Traumatic brain injury medicine.medical_treatment [SDV]Life Sciences [q-bio] Poison control macromolecular substances Suicide prevention Occupational safety and health Cohort Studies 03 medical and health sciences 0302 clinical medicine Injury prevention Brain Injuries Traumatic Medicine Humans Prospective Studies Prospective cohort study child prospective cohort study Rehabilitation business.industry Participation Human factors and ergonomics medicine.disease [SDV] Life Sciences [q-bio] Brain Injuries Physical therapy outcome Female Self Report 0305 other medical science business severe traumatic brain injury 030217 neurology & neurosurgery |
| Zdroj: | Disability and Rehabilitation Disability and Rehabilitation, Informa Healthcare/Taylor and Francis, 2020, 42 (17), pp.2402-2411. ⟨10.1080/09638288.2019.1594398⟩ Disability and Rehabilitation, 2020, 42 (17), pp.2402-2411. ⟨10.1080/09638288.2019.1594398⟩ |
| ISSN: | 0963-8288 1464-5165 |
| Popis: | International audience; Purpose: Participation in home, school and community activities is considered as the ultimate aim of rehabilitation. The aims of this study were to examine participation seven years post-severe childhood traumatic brain injury and factors associated with participation. Materials and methods: Participants were enrolled in the Traumatisme Grave de l’Enfant (Severe Childhood Injury) cohort study following severe accidental childhood traumatic brain injury. Participation seven years post-injury, was examined using parent- and self-report forms of the Child and Adolescent Scale of Participation among 37 patients [62% males, mean age 15.4 years (SD = 4.4), mean length of coma 6.68 days (SD = 4.96)] and 33 matched controls. Results: Parent reports indicated significantly lower participation among patients compared to controls, but the self-reports did not. In the traumatic brain injury group, parent-reported participation was variable, with 22% of the patients clearly showing greater restrictions than controls. Participation restrictions were significantly associated with injury severity, poor functional outcome one-year post-injury, executive and behavioral difficulties and higher fatigue levels seven years post-injury, but not with pre-injury nor family factors. Conclusions: Several years after severe childhood traumatic brain injury, participation appears to depend more on injury-related factors than on environmental factors. In self-reports assessments of participation, it could be difficult for children and adolescents to distinguish capacity from performance. |
| Databáze: | OpenAIRE |
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