| Popis: |
The challenges of a parental cancer diagnosis not only affect the patients themselves, but the entire family. Moreover, there is evidence that family members are at increased risk of developing psychosocial problems. Therefore, the aim of the research projects presented within this cumulative dissertation was to obtain a better insight of the impact of parental cancer on the family and to develop, implement and evaluate interventions to support families in this exceptional situation. The first two publications cover results of the feasibility of and the lessons learned from a web-based intervention program during the first months of treatment. Furthermore, it reports on psychological adjustment in children of a parent with cancer, family satisfaction and communication, and on the effect of minimal contact interventions on the couple. Due to the low enrolment rate, feasibility of the web-based program was limited. Baseline data of the 28 participating children showed a good adjustment to the parental cancer diagnosis and high family communication levels. Couples showed signs of anxiety and decreased optimism scores at baseline, which slightly improved in patients. Feedback from participating families exhibit that the program was helpful for families with a newly diagnosed parent who are in need of specific information on cancer and family. The third publication discusses the feasibility and acceptability of a face-to-face short-term counselling intervention. Data showed a limited feasibility but good acceptability of the counselling. It was considered recommendable and helpful by nearly all participating families. The enrolment rate was low due to different reasons, such as having no need, lack of time, or local distance. Our research projects suggest that a parental cancer diagnosis may represent a burden, may trigger anxiety and may decrease optimism. Low-threshold interventions represent a helpful option to use at a time when needed. |
