Combining online and in-person methods to evaluate the content validity of PROMIS fatigue short forms in rheumatoid arthritis
| Autor: | Jeffrey R. Curtis, Alessandra Butanis, Katherine Clegg Smith, Susan J. Bartlett, Anna Kristina Gutierrez, Vivian P. Bykerk, Anne Lyddiatt, A. L. Leong, Ana Maria Orbai, Clifton O. Bingham, W. B. Nowell, Stephen D. Ginsberg |
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| Rok vydání: | 2018 |
| Předmět: |
Male
medicine.medical_specialty Article General Fatigue Disease activity Arthritis Rheumatoid Education Distance 03 medical and health sciences Short Forms 0302 clinical medicine Quality of life Surveys and Questionnaires Interview Psychological medicine Content validity Humans 030212 general & internal medicine Fatigue Quality of Life Research 030203 arthritis & rheumatology business.industry Public Health Environmental and Occupational Health Reproducibility of Results Cognition Middle Aged medicine.disease Rheumatoid arthritis Physical therapy Quality of Life Female business |
| Zdroj: | Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 27(9) |
| ISSN: | 1573-2649 |
| Popis: | PURPOSE: Fatigue is frequent and often severe and disabling in RA, and there is no consensus on how to measure it. We used online surveys and in-person interviews to evaluate PROMIS Fatigue 7a and 8a short forms (SFs) in people with RA. METHODS: We recruited people with RA from an online patient community (n=200) and three academic medical centers (n=84) in the US. Participants completed both SFs then rated the comprehensiveness and comprehensibility of the items to their fatigue experience. Cognitive debriefing of items was conducted in a subset of 32 clinic patients. Descriptive statistics were calculated, and associations were evaluated using Pearson and Spearman correlation coefficients. RESULTS: Mean SF scores were similar (p≥0.61) among clinic patients reflecting mild fatigue (i.e., 54.5–55.9), but were significantly higher (p |
| Databáze: | OpenAIRE |
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