Trajectories of self‐management and independence in youth with spina bifida: Demographic predictors of growth

Autor: Monique M. Ridosh, William Adams, Fabiola Magaña, Kathleen J. Sawin, Grayson N. Holmbeck
Rok vydání: 2022
Předmět:
Zdroj: Child Care Health Dev
ISSN: 1365-2214
0305-1862
DOI: 10.1111/cch.13065
Popis: AIM: The purpose of this study was to examine the trajectories of condition and independent living self-management in youth with spina bifida. METHODS: A diverse sample of adolescents and young adults (AYA) with spina bifida (SB) completed the Adolescent/Young Adult Self-Management and Independence Scale (AMIS-II) across four time points. Parents reported on demographic characteristics including age, sex, race/ethnicity, and family income. Growth in self-management and its subscales (condition and independent living) were estimated using linear mixed effects models as a function of respondents’ demographics. RESULTS: This study included 99 respondents age 18 to 27 years old. About half were female (52.5%) and White (52.5%); 15.2% were Black, and about a third were Hispanic/Latino (32.3%). Eighty-seven AYAs (87.9%) had myelomeningocele. The lesion level was 31.3% sacral, 48.5% lumbar, and 18.2% thoracic. A third of the families earned less than 50K. Overall, self-management growth was dependent on age, sex, and race/ethnicity, but not income. Growth in condition self-management depended on sex; only males demonstrated increasing growth ([Formula: see text] , p < .001). Black participants endorsed higher increasing total and condition self-management when compared to White ([Formula: see text] and 0.17, respectively, both p < .05) and Hispanic/Latino ([Formula: see text] and 0.21, respectively, both p = .02) respondents. CONCLUSION: This study provides evidence of differences in growth of self-management by demographic/social determinants of health. Possible reasons for differences are discussed. Predictors of changes in self-management behaviors over time in young adults with SB can identify subgroups in need of further study.
Databáze: OpenAIRE
Externí odkaz: