Neurologist–patient communication about epilepsy in the United States, Spain, and Germany
| Autor: | Philippe Ryvlin, Aleksandra Adomas, John M. Stern, Fernando Cendes, Frank Gilliam, Lauren Walter, Patrick Kwan, Brien J. Smith, Joseph I Sirven |
|---|---|
| Rok vydání: | 2018 |
| Předmět: |
medicine.medical_specialty
Vocabulary business.industry Research media_common.quotation_subject Treatment goals Disease medicine.disease nervous system diseases 03 medical and health sciences Identification (information) Epilepsy 0302 clinical medicine Family medicine mental disorders Health care medicine Seizure control Patient communication 030212 general & internal medicine Neurology (clinical) business 030217 neurology & neurosurgery media_common |
| Zdroj: | Neurology: Clinical Practice. 8:93-101 |
| ISSN: | 2163-0933 2163-0402 |
| DOI: | 10.1212/cpj.0000000000000442 |
| Popis: | BackgroundEffective communication between patients and their health care providers is recognized as critically important to improve the quality of health services for individuals with epilepsy. We aimed to describe in-office neurologist–patient conversations about epilepsy and focus on disease identification, shared decision-making, and care planning.MethodsTranscripts and audio recordings of conversations between patients and neurologists in the United States, Spain, and Germany were analyzed linguistically in the topic areas of epilepsy identification and diagnosis, disease education, treatments, and care planning. Analyses included word-level assessments, topic switching, strategies of information elicitation, identification of topics discussed, quantification of questions asked, and assessment of types of questions asked.ResultsConversations of 17 neurologists in the United States, 12 in Spain, and 6 in Germany, with 50, 20, and 16 patients, respectively, were analyzed. Neurologists tended to utilize an event-based, patient-friendly vocabulary to refer to seizures, and in the United States, they avoided using the term “epilepsy.” Regardless of who initiated the treatment discussion, the neurologists in all 3 countries were unilaterally responsible for the treatment decision and choice of medication. When describing a new medication, neurologists most often discussed potential side effects but did not review potential benefits. Neurologists rarely defined seizure control and did not ask patients what seizure control meant to them.ConclusionsWe identified opportunities related to vocabulary, decision-making, and treatment goal setting that could be targeted to improve neurologist–patient communication about epilepsy, and ultimately, the overall treatment experience and outcomes for patients. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|