Recent developments in clinimetric instruments
| Autor: | S. M. Padankatti, Björn Lundin, S Funk, Roongtiwa Vachalathiti, K. Beeton, M. Devadarasini, P. de Kleijn, Pradeep M. Poonnoose, P Petrini, Judy Ann John, F. R. Van Genderen, A Abad, M. L. Kavitha, N. Zourikian, P. Hilliard, Marilyn J. Manco-Johnson, Brian M. Feldman, D. Pazani, M. van den Berg, Alessandro Doria, J. van der Net, A. Srivastava, BM Bergstrom, R.H.H. Engelbert |
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| Přispěvatelé: | Lectoraat Fysiotherapie - Transitie van Zorg bij Complexe Patiënten, Hogeschool van Amsterdam, Kenniscentrum ACHIEVE, Faculteit Gezondheid, Faculteit Digitale Media en Creatieve Industrie, Other departments |
| Jazyk: | angličtina |
| Rok vydání: | 2006 |
| Předmět: |
Male
medicine.medical_specialty Activities of daily living Best practice media_common.quotation_subject Psychological intervention MEDLINE Haemophilia Hemophilia A Severity of Illness Index Physical medicine and rehabilitation hemic and lymphatic diseases Activities of Daily Living medicine Health Status Indicators Humans In patient Function (engineering) Genetics (clinical) media_common business.industry Hematology General Medicine medicine.disease Magnetic Resonance Imaging Fish Joints business |
| Zdroj: | Haemophilia : the official journal of the World Federation of Hemophilia, 12 Suppl 3, 102-107. Wiley-Blackwell Haemophilia, 12(Suppl. 3), 102-107. Wiley-Blackwell |
| ISSN: | 1365-2516 1351-8216 |
| DOI: | 10.1111/j.1365-2516.2006.01265.x |
| Popis: | Assessment of impairment and function is essential in order to monitor joint status and evaluate therapeutic interventions in patients with haemophilia. The improvements in the treatment of haemophilia have required the development of more sensitive tools to detect the more minor dysfunctions that may now be apparent. This paper outlines some of the recent developments in this field. The Haemophilia Joint Health Score (HJHS) provides a systematic and robust measure of joint impairment. The MRI Scoring System has been designed to provide a comprehensive scoring system combining both progressive and additive scales. The Functional Independence Score for Haemophilia (FISH) has been developed to assess performance of functional activities and can be used in conjunction with the Haemophilia Activities List (HAL) which provides a self report measure of function. It is recommended that both measures are evaluated as these tools measure different constructs. Further refinement and testing of the psychometric properties of all of these tools is in progress. More widespread use of these tools will enable the sharing of data across the world so promoting best practice and ultimately enhancing patient care. |
| Databáze: | OpenAIRE |
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