Social Media Use and Preferences in Patients With Inflammatory Bowel Disease
| Autor: | Francis A. Farraye, Millie D. Long, Wenli Chen, Christopher F. Martin, Jacob Groshek, Jason Reich, Janice Weinberg, Ling Guo |
|---|---|
| Rok vydání: | 2018 |
| Předmět: |
Adult
Male medicine.medical_specialty 020205 medical informatics 02 engineering and technology Disease Logistic regression Inflammatory bowel disease Cohort Studies 03 medical and health sciences 0302 clinical medicine Patient Education as Topic Surveys and Questionnaires 0202 electrical engineering electronic engineering information engineering medicine Humans Immunology and Allergy Social media 030212 general & internal medicine Disease management (health) Hepatology business.industry Gastroenterology Disease Management Patient Preference Odds ratio Inflammatory Bowel Diseases Prognosis medicine.disease Ulcerative colitis digestive system diseases Cross-Sectional Studies Family medicine Cohort 030211 gastroenterology & hepatology Female business Social Media Follow-Up Studies |
| Zdroj: | Inflammatory Bowel Diseases. 25:587-591 |
| ISSN: | 1536-4844 1078-0998 |
| DOI: | 10.1093/ibd/izy280 |
| Popis: | Introduction There has been growing interest in social media use in managing chronic illnesses. The aim of this study was to assess social media usage in a large sample of patients with inflammatory bowel disease (IBD). Methods We performed a cross-sectional study within the Crohn's and Colitis Foundation's IBD Partners' internet-based cohort. We used bivariate analyses to compare patient characteristics by various factors associated with social media utilization. We used logistic regression models to determine factors independently associated with using social media to obtain IBD-related information. Results A total of 1960 IBD patients were included. Most respondents reported spending between 30 and 60 minutes on social media sites per day. Thirty-two percent of respondents agreed that social media could be useful for disease management. Most respondents agreed that social media should be used to connect patients with IBD-related organizations and to obtain IBD-related information online. Fifty percent of respondents could not rate the quality of IBD information posted online. Concerns surrounding social media use included privacy/confidentiality and lack of trust of information posted. The most frequently used social media website was Facebook. Thirty-two percent of respondents used social media at least once in the last week to obtain or post IBD-related content. Factors independently associated with social media use for IBD included female gender (odds ratio [OR] 1.43; 95% CI,1.10-1.87), age (OR 0.99; 95% CI, 0.98-1.00), remission (OR 0.63; 95% CI, 0.50-0.79), and a diagnosis of Crohn's disease (CD) rather than ulcerative colitis (UC) (OR 0.74; 95% CI, 0.58-0.93). Conclusions Patients with IBD in this cohort expressed a substantial interest in using social media to aid in disease management. Use was higher in younger patients, females, and patients with active disease. Most patients were unsure of the quality of information posted online, which represents opportunities for clinicians to guide patients to appropriate resources. |
| Databáze: | OpenAIRE |
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