Public Involvement in research within care homes: Benefits and challenges in the APPROACH Study
| Autor: | Hazel Morbey, Helen Masey, Angela Dickinson, Katherine Froggatt, Christina R. Victor, Sue L Davies, Wendy Martin, Claire Goodman |
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| Jazyk: | angličtina |
| Rok vydání: | 2015 |
| Předmět: |
Male
Health and social care research Care homes health and social care research older people 03 medical and health sciences 0302 clinical medicine Professional Role Nursing Patient and public involvement Humans 030212 general & internal medicine Sociology Prospective Studies care homes Qualitative Research 030503 health policy & services Data Collection Public Health Environmental and Occupational Health patient and public involvement Consumer Behavior Public involvement Nursing Homes Original Research Paper England Research Design Organizational Case Studies Female Older people 0305 other medical science Original Research Papers |
| Zdroj: | Health Expectations : An International Journal of Public Participation in Health Care and Health Policy |
| Popis: | Public involvement in research (PIR) can improve research design and recruitment. Less is known about how PIR enhances the experience of participation and enriches the data collection process. In a study to evaluate how UK care homes and primary health care services achieve integrated working to promote older people’s health, PIR was integrated throughout the research processes. Objectives This paper aims to present one way in which PIR has been integrated into the design and delivery of a multi-site research study based in care homes. Design A prospective case study design, with an embedded qualitative evaluation of PIR activity. Setting and Participants Data collection was undertaken in six care homes in three sites in England. Six PIR members participated: all had prior personal or work experience in care homes. Data Collection Qualitative data collection involved discussion groups, and site-specific meetings to review experiences of participation, benefits and challenges, and completion of structured fieldwork notes after each care home visit. Results PIR members supported: recruitment, resident and staff interviews and participated in data interpretation. Benefits of PIR work were resident engagement that minimised distress and made best use of limited research resources. Challenges concerned communication and scheduling. Researcher support for PIR involvement was resource intensive. Discussion and Conclusions Clearly defined roles with identified training and support facilitated involvement in different aspects Public Involvement in Research members of the research team: Gail Capstick, Marion Cowie, Derek Hope, Rita Hewitt, Alex Mendoza, John Willmott. Also the involvement of Steven Iliffe and Heather Gage |
| Databáze: | OpenAIRE |
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