Views of advanced cancer patients, families, and oncologists on initiating and engaging in advance care planning: a qualitative study
| Autor: | James T. Toguri, Lindsay Grant-Nunn, Robin Urquhart |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
Advance care planning
medicine.medical_specialty Palliative care animal structures lcsh:Special situations and conditions education Coding (therapy) Limited access Advance Care Planning stomatognathic system Neoplasms Health care medicine Humans Family Qualitative Research Cancer Oncologists Physician-Patient Relations Health professionals business.industry lcsh:RC952-1245 General Medicine Advanced cancer humanities Family medicine End of life bacteria business Psychology Qualitative Qualitative research Research Article |
| Zdroj: | BMC Palliative Care BMC Palliative Care, Vol 19, Iss 1, Pp 1-11 (2020) |
| ISSN: | 1472-684X |
| Popis: | Background Advance care planning (ACP) is a process by which patients reflect upon their goals, values and beliefs to allow them to make decisions about their future medical treatment that align with their goals and values, improving patient-centered care. Despite this, ACP is underutilized and is reported as one of the most difficult processes of oncology. We sought to: 1) explore patients’ and families’ understanding, experience and reflections on ACP, as well as what they need from their physicians during the process; 2) explore physicians’ views of ACP, including their experiences with initiating ACP and views on ACP training. Methods This was a qualitative descriptive study in Nova Scotia, Canada with oncologists, advanced cancer out-patients and their family members. Semi-structured interviews with advanced cancer out-patients and their family members (n = 4 patients, 4 family members) and oncologists (n = 10) were conducted; each participant was recruited separately. Data were analyzed using constant comparative analysis, which entailed coding, categorizing, and identifying themes recurrent across the datasets. Results Themes were identified from the patient / family and oncologist groups, four and five respectively. Themes from patients / families included: 1) positive attitudes towards ACP; 2) healthcare professionals (HCPs) lack an understanding of patients’ and families’ informational needs during the ACP process; 3) limited access to services and supports; and 4) poor communication between HCPs. Themes from oncologists included: 1) initiation of ACP discussions; 2) navigating patient-family dynamics; 3) limited formal training in ACP; 4) ACP requires a team approach; and 5) lack of coordinated systems hinders ACP. Conclusions Stakeholders believe ACP for advanced cancer patients is important. Patients and families desire earlier and more in-depth discussion of ACP, additional services and supports, and improved communication between their HCPs. In the absence of formal training or guidance, oncologists have used clinical acumen to initiate ACP and a collaborative healthcare team approach. |
| Databáze: | OpenAIRE |
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