People with Parkinson’s Disease: What Symptoms Do They Most Want to Improve and How Does This Change with Disease Duration?
Autor: | Claire J. Bale, Martin Rumsby, Rebecca J. Port, Anneesa Amjad, Graham Brown, Ian F. Harrison |
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Jazyk: | angličtina |
Rok vydání: | 2021 |
Předmět: |
Change over time
Research Report medicine.medical_specialty Parkinson's disease Disease duration Disease 03 medical and health sciences Cellular and Molecular Neuroscience 0302 clinical medicine Quality of life (healthcare) Surveys and Questionnaires Tremor Medicine Humans 030212 general & internal medicine Duration (project management) Psychiatry Balance (ability) Dyskinesias business.industry Parkinson Disease medicine.disease Dyskinesia quality of life patient priorities Parkinson’s disease symptoms Neurology (clinical) progression medicine.symptom business 030217 neurology & neurosurgery |
Zdroj: | Journal of Parkinson's Disease |
ISSN: | 1877-718X 1877-7171 |
Popis: | Background: Parkinson’s disease (PD) is a neurodegenerative condition with a diverse and complex pattern of motor and non-motor symptoms which change over time with disease duration. Objective: The aims of the present study were to discover what symptoms matter most to people with the condition and to examine how these priorities change with disease duration. Methods: A simple free-text online survey (using SmartSurvey) was developed by Parkinson’s UK, which asked participants to identify up to three aspects of the condition they would most like to see improvement in. Results: 790 people participated reporting 2,295 issues related to PD which were grouped into 24 broad symptom domains. Of these, 1,358 (59.1%) were categorised as motor symptoms, 859 (37.4%) as non-motor issues and 78 (3.4%) as medication problems. This study reveals how certain features of PD become more or less important to patients as the condition progresses. Non-motor symptoms were highly cited from the very earliest stages of PD. Problems with walking, balance and falls, speech problems, freezing and dyskinesia become increasingly important as the condition progresses whereas tremor, stiffness and psychological health become decreasingly important as the condition progresses. Conclusions: The data suggest that the priorities of people affected by PD for improving life are personal and change with duration of the condition. These findings have implications for developing person-centred management and care, as well as for directing future research to improve quality of life. |
Databáze: | OpenAIRE |
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