What Is the Capacity of Individuals with Schizophrenia and Bipolar Disorder to Make Healthcare Decisions? An Exploratory Study of the Views of Patients, Psychiatrists, and Family Caregivers—A Survey on Decisional Capacity in Mental Health
| Autor: | Alfredo Calcedo Barba, Jacinta Hastings, Miia Männikkö, Enric Vicens Pons, Silvia Paz Ruiz |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
medicine.medical_specialty
lcsh:RC435-571 Exploratory research Context (language use) behavioral disciplines and activities decision making 03 medical and health sciences 0302 clinical medicine lcsh:Psychiatry Health care mental disorders medicine survey 030212 general & internal medicine Bipolar disorder Psychiatry Psiquiatría decisional capacity General Environmental Science bipolar disorder business.industry Family caregivers healthcare medicine.disease Mental illness Mental health 030227 psychiatry schizophrenia Schizophrenia General Earth and Planetary Sciences business |
| Zdroj: | Psychiatry International, Vol 2, Iss 10, Pp 127-144 (2021) E-Prints Complutense. Archivo Institucional de la UCM instname Psychiatry International Volume 2 Issue 2 Pages 10-144 |
| ISSN: | 2673-5318 |
| Popis: | Background: Research on the decisional capacity of schizophrenia and bipolar disorder patients mostly reflects the hospital context. Aim: To describe the views of patients, psychiatrists, and caregivers on the capacity of individuals with schizophrenia and bipolar disorder to make everyday decisions on their care related to their illness. Methods: A survey was conducted among schizophrenia and bipolar disorder patients, psychiatrists, and caregivers (June 2019 to January 2020 seven countries). A questionnaire was emailed to members of the Global Alliance of Mental Illness of Advocacy Network—Europe (GAMIAN patients) and the European Federation of Families of People with Mental Illness (EUFAMI caregivers) and to psychiatrists who voluntarily agreed to participate. Questions referred to patients’ involvement and capacity for healthcare decision making, and to barriers to and opportunities for autonomous decision making. Frequency, agreement, and importance were rated on Likert scales. Descriptive statistics were conducted. Results: 21 schizophrenia or bipolar disorder patients (52.3% female mean age (years) ± SD: 50.71 ± 12.02), 11 psychiatrists (18.2% female), and 15 caregivers (86.6% female 100% family related) participated in the survey. In total, 86% of patients felt frequently involved in decisions about everyday care and medications, and 91% of psychiatrists and 40% of caregivers perceived the same 38% of patients felt frequently involved in decisions about the use of acute symptom medications, and 57% on care planning, and 55% and 82% of psychiatrists, and 40% and 53% of caregivers, respectively, believed the same and 86% of patients, 91% of psychiatrists, and 47% of caregivers agreed on the capacity of schizophrenia or bipolar disorder patients to value the implications of taking medicines to prevent acute psychotic crises. Poor understanding and training are barriers, while advocacy and increasing interest in patients’ needs are opportunities for increasing autonomous decision making. Conclusions: Stakeholders concur that schizophrenia and bipolar disorder patients have the capacity to make everyday decisions around their care related to their illness, including acute symptom management. Barriers and opportunities exist to foster autonomous decisions among mental illness individuals. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|