Mothers' perceptions of children's quality of life following early diagnosis and treatment for retinoblastoma (Rb)

Autor:	Christine Eiser, Judith Kingston, Linda Sheppard
Rok vydání:	2005
Předmět:	Male Pediatrics medicine.medical_specialty Adolescent Retinal Neoplasms Intelligence education Population Visual impairment Mothers Blindness Education Interpersonal relationship Social support Quality of life Developmental and Educational Psychology Humans Medicine Interpersonal Relations Child Exercise education.field_of_study Intelligence quotient Social perception business.industry Retinoblastoma Public Health Environmental and Occupational Health Facies Social Support humanities Social Perception Relative risk Pediatrics Perinatology and Child Health Quality of Life Recreation Female medicine.symptom business Clinical psychology
Zdroj:	Child: Care, Health and Development. 31:137-142
ISSN:	1365-2214 0305-1862
DOI:	10.1111/j.1365-2214.2005.00498.x
Popis:	We describe the Quality of Life (QoL) and IQ of survivors of retinoblastoma (Rb), both in relation to the normal population and between subgroups of Rb patients differing in relative risk (i.e. unilateral vs. bilateral disease). The sample included 54 children (28 males, age-range 8-16 years) and their mothers. Mothers completed standardized questionnaires to report their own QoL and that of their child. Children completed a brief IQ test. Compared with population norms, mothers reported lower levels of QoL for their child on total QoL and for sub-scales measuring Physical and Psychosocial function. Mothers reported their own QoL to be comparable or higher than norms on all but one of eight sub-scales (energy/vitality). Compared with population norms, children with no visual impairment scored in the normal range for tasks measuring Verbal IQ, but below the mean on tasks measuring Performance IQ. According to their mothers, survivors of Rb have excellent school attendance and take part in most school activities. However, based on standardized questionnaire, they show compromised QoL. We consider that excellent survival rates in Rb are matched with good QoL according to mothers' report.
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d12bfec338dfb0aea4114222e335ec5e https://doi.org/10.1111/j.1365-2214.2005.00498.x Zobrazit plný text záznamu Plný text ve formátu PDF Plný text ve formátu HTML
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