Ethics in Community-Based Research with Vulnerable Children: Perspectives from Rwanda
| Autor: | Mary C. Smith Fawzi, Stephanie L. Smith, Anne Stevenson, Giuseppe Raviola, Lauren C. Ng, William R. Beardslee, Yvonne Kayiteshonga, Agnes Binagwaho, Theresa S. Betancourt, Justin I. Bizimana, Christina Mushashi, Fredrick Kanyanganzi, Catherine M. Kirk |
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| Rok vydání: | 2016 |
| Předmět: |
Male
Community-Based Participatory Research 050103 clinical psychology Adolescent lcsh:Medicine Library science Vulnerable Populations Correct name Humans Medicine 0501 psychology and cognitive sciences lcsh:Science Child Acquired Immunodeficiency Syndrome Community based research Multidisciplinary business.industry lcsh:R 05 social sciences Rwanda Correction Suicide Mental Health Socioeconomic Factors lcsh:Q Female Citation business 050104 developmental & child psychology |
| Zdroj: | PLoS ONE PLoS ONE, Vol 11, Iss 9, p e0163384 (2016) |
| ISSN: | 1932-6203 |
| Popis: | A "risk of harm" protocol to identify youth in need of immediate emergency assistance in a study on mental health and HIV in Rwanda among 680 youth ages 10-17 is described. Cases are presented that describe the experience in using this protocol to ensure safety of participants, with ethical and logistical challenges considered. Among the population of the study, 3.2% were deemed "risk of harm." The most prevalent presenting problem was non-fatal suicidal behavior (91% of risk of harm cases), with 36% having a history of a reported previous attempt. Challenges included: acute food insecurity/significant poverty; lack of support/adequate supervision from family members; family violence; alcohol abuse; and HIV-related stigma. Development of a "risk of harm" protocol and collaboration between study staff, community leadership, health authorities, and health workers are critical to ensuring participants' safety in research among vulnerable populations. |
| Databáze: | OpenAIRE |
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