FACE-Q Craniofacial Module: Part 1 validation of CLEFT-Q scales for use in children and young adults with facial conditions
| Autor: | Marc C. Swan, Jesse A. Goldstein, Dylan J. Murray, David W. Johnson, Shirley Bracken, Karen W. Y. Wong Riff, Douglas J. Courtemanche, Daniel P. Butler, Claudia Malic, Ali Tassi, Andrea L. Pusic, Charlene Rae, Tim Goodacre, Yun S. Phua, Neil W. Bulstrode, Rafael Denadai, Stefan J. Cano, Marinka L. F. Hol, Ingrid M. Ganske, Anne F. Klassen, Eleonore E. Breuning, Damian D. Marucci, Justine O'Hara |
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| Přispěvatelé: | Graduate School, Oral and Maxillofacial Surgery |
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Adult
Male medicine.medical_specialty Patient- reported outcome measure Psychometrics Adolescent Esthetics Cleft lip and/or palate Sample (statistics) Audiology Craniofacial Abnormalities 03 medical and health sciences Craniofacial 0302 clinical medicine Quality of life Cronbach's alpha CLEFT-Q medicine Content validity FACE-Q Humans 030212 general & internal medicine Patient Reported Outcome Measures Child PROM Rasch model business.industry Alveolar Bone Grafting Orthognathic Surgical Procedures Reproducibility of Results Facial conditions 030206 dentistry Rhinoplasty Lip Surgery Checklist Distress Quality of Life Female business Noncleft facial conditions |
| Zdroj: | Journal of plastic, reconstructive & aesthetic surgery, 74(9), 2319-2329. Churchill Livingstone |
| ISSN: | 1748-6815 |
| Popis: | Summary Background The CLEFT-Q includes 12 independently functioning scales that measure appearance (face, nose, nostrils, teeth, lips, jaws), health-related quality of life (psychological, social, school, speech distress), and speech function, and an eating/drinking checklist. Previous qualitative research revealed that the CLEFT-Q has content validity in noncleft craniofacial conditions. This study aimed to examine the psychometric performance of the CLEFT-Q in an international sample of patients with a broad range of facial conditions. Methods Data were collected between October 2016 and December 2019 from 2132 patients aged 8 to 29 years with noncleft facial conditions. Rasch measurement theory (RMT) analysis was used to examine Differential Item Function (DIF) by comparing the original CLEFT-Q sample and the new FACE-Q craniofacial sample. Reliability and validity of the scales in a combined cleft and craniofacial sample (n=4743) were examined. Results DIF was found for 23 CLEFT-Q items when the datasets for the two samples were compared. When items with DIF were split by sample, correlations between the original and split person locations showed that DIF had negligible impact on scale scoring (correlations ≥0.995). In the combined sample, RMT analysis led to the retention of original content for ten CLEFT-Q scales, modification of the Teeth scale, and the addition of an Eating/Drinking scale. Data obtained fit with the Rasch model for 11 scales (exception School, p=0.04). Person Separation Index and Cronbach alpha values met the criteria. Conclusion The scales described in this study can be used to measure outcomes in children and young adults with cleft and noncleft craniofacial conditions. |
| Databáze: | OpenAIRE |
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