Recommendations from Thai stakeholders about protecting HIV remission (‘cure’) trial participants: report from a participatory workshop
| Autor: | Udom Likhitwonnawut, Nuchanart Q Ormsby, Gail E. Henderson, Kristine J. Kuczynski, Krittaecho Siripassorn, Stuart Rennie, Thidarat Jupimai, Holly L. Peay, Sinéad Isaacson, R. Jean Cadigan, Kunakorn Kanchawee |
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| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
Research Report
medicine.medical_specialty Health (social science) Human immunodeficiency virus (HIV) Stakeholder engagement Context (language use) HIV Infections 030312 virology medicine.disease_cause 03 medical and health sciences 0302 clinical medicine Informed consent Everyday language medicine Humans 030212 general & internal medicine Language 0303 health sciences Clinical Trials as Topic Informed Consent stakeholder engagement Public Health Environmental and Occupational Health HIV Citizen journalism General Medicine Thailand ethics AcademicSubjects/MED00390 Treatment interruption Family medicine cure trials Original Article Psychology Psychosocial |
| Zdroj: | International Health |
| ISSN: | 1876-3405 1876-3413 |
| Popis: | Background The social/behavioral HIV Decision-Making Study (DMS) assesses informed consent and trial experiences of individuals in HIV remission trials in Thailand. We convened a 1-d multi-stakeholder participatory workshop in Bangkok. We provide a meeting summary and reactions from DMS investigators. Methods Workshop members viewed de-identified interview excerpts from DMS participants. They deliberated on the findings and made recommendations regarding informed choice for remission trials. Notes and recordings were used to create a summary report, which was reviewed by members and refined. Results Workshop members’ recommendations included HIV education and psychosocial support to establish the basis for informed choice, key trial information to be provided in everyday language, supportive decision-making processes and psychosocial care during and after the trial. Concerns included participant willingness to restart antiretrovirals after trial-mandated treatment interruption, unintended influence of the research team on decision-making and seemingly altruistic motivations for trial participation that may signal attempts to atone for stigmatized behavior. Conclusions The workshop highlighted community perspectives and resulted in recommendations for supporting informed choice and psychosocial and physical health. These are the first such recommendations arising from a deliberative process. Although some elements are rooted in the Thai context, most are applicable across remission trials. |
| Databáze: | OpenAIRE |
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