Emotional Burden and Coping Strategies of Parents of Children with Rare Diseases

Autor:	Roberto Lala, Luca Ostacoli, Pier Maria Furlan, Claudio Carezana, Marco Zuffranieri, Federica Trivelli, Francesco Oliva, Rocco Luigi Picci
Rok vydání:	2013
Předmět:	Coping (psychology) Medical knowledge rare diseases parents coping quality of life anxiety Social support Mood Developmental and Educational Psychology medicine Anxiety medicine.symptom Life-span and Life-course Studies Psychology Clinical psychology
Zdroj:	Journal of Child and Family Studies. 24:514-522
ISSN:	1573-2843 1062-1024
DOI:	10.1007/s10826-013-9864-5
Popis:	Rare diseases are chronic and sometimes life-threatening conditions which differ from others due to less definite identity and more difficult clinical management. These peculiar features may hinder the parental adaptational process. The study aimed to compare the emotional burden and coping strategies of parents of children with rare diseases (CRD) with those of parents of children with chronic diseases (CCD). Quality of life, anxiety, depression, and mood states of 55 parents of CRD and of 56 parents of CCD were assessed by specific validated assessment tools. Parametric and non-parametric tests were used for multiple comparisons. Bivariate correlations were employed to explore the relationship between coping and emotional burden. Parents of CRD were more anxious, more confused–bewildered, and less active–vigorous than those of CCD (p
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ccb5d5a35e8e6f702eedd70dc33e8ba4 https://doi.org/10.1007/s10826-013-9864-5 Zobrazit plný text záznamu Full text from SpringerLink