Too little too late? Communication with patients with congenital heart disease about challenges of adult life
| Autor: | Sara L. Partington, Lynda Tobin, Adrienne H. Kovacs, Leah A. Goldberg, David Drajpuch, Lacey P. Gleason, Lisa X. Deng, Yuli Y. Kim, Katherine Awh, Abigail Khan, Christopher E. Mascio, Stephanie Fuller |
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| Rok vydání: | 2018 |
| Předmět: |
Adult
Employment Heart Defects Congenital Male medicine.medical_specialty Health Knowledge Attitudes Practice Heart disease 030204 cardiovascular system & hematology 03 medical and health sciences Young Adult 0302 clinical medicine Life Expectancy 030225 pediatrics Unplanned pregnancy Surveys and Questionnaires Health insurance Medicine Humans Radiology Nuclear Medicine and imaging Prospective Studies Curriculum Aged Physician-Patient Relations Insurance Health business.industry Communication General Medicine Middle Aged Quarter (United States coin) medicine.disease Adult life Family planning Scale (social sciences) Family medicine Pediatrics Perinatology and Child Health Surgery Female Cardiology and Cardiovascular Medicine business Follow-Up Studies |
| Zdroj: | Congenital heart diseaseREFERENCES. 14(4) |
| ISSN: | 1747-0803 |
| Popis: | OBJECTIVE To investigate the experiences and communication preferences of adult patients with congenital heart disease (CHD) in the domains of employment, insurance, and family planning. DESIGN Patients ≥ 18 years of age completed a questionnaire about experiences and communication preferences regarding employment, health insurance, and family planning. RESULTS Of 152 patients (median age = 33 years, 50% female, 35% with CHD of great complexity), one in four reported work-related problems due to CHD and a quarter also recalled a previous gap in health insurance. Of females, 29% experienced an unplanned pregnancy. The median importance of discussion ratings (on a 0-10 scale) were 3.5 (employment), 6.0 (insurance), and 8.0 (family planning). Few patients recalled discussions about employment (19%) or health insurance (20%). Over half recalled discussions about family planning, although males were less likely to have had these discussions than females (24% vs 86%, P |
| Databáze: | OpenAIRE |
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