Exploring the socioethical dilemmas in the use of a global health archive
| Autor: | Anthony T Williams, Victoria Cranna, Isla-Kate Morris, Matthew James Vaughton Holmes, Jennifer S. Le Blond, Gail Davey |
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| Rok vydání: | 2018 |
| Předmět: |
Interpretation (philosophy)
05 social sciences Medical school 050401 social sciences methods 06 humanities and the arts Bioethics 0603 philosophy ethics and religion Medical research medicine.disease Biobank Education lcsh:Ethics Philosophy 0504 sociology Political science Tissue bank R723 Global health medicine Engineering ethics 060301 applied ethics Podoconiosis lcsh:BJ1-1725 |
| Zdroj: | Research Ethics Review, Vol 15 (2019) |
| ISSN: | 2047-6094 1747-0161 |
| Popis: | A global health archive consisting of podoconiosis tissue slides and blocks (which was collected and imported into the UK before the introduction of the Human Tissue Act), was donated to Brighton & Sussex Medical School in 2014. There is little guidance on the socioethical and legal issues surrounding the retrospective use of archived or ‘abandoned’ tissue samples, which poses a number of questions relating to the ethical standing of the archive. There is a great deal of interpretation in the guidelines that are currently in existence; however, modern ethical principles cannot be applied as it is not feasible to either reconsent or retrospectively seek approval. Our research team believed that it was unethical to leave the archive in storage, as this option favours neither researcher nor subjects. Permission was obtained from the Human Tissue Authority and a local ethics board for the tissues to be utilized in on-going research on podoconiosis aetiology. There is a delicate balance between the benefits gained by society relating to the development and progress of scientific research and the risks to the donor regarding the reuse of their tissues. Clearer guidelines should be made available to ensure that researchers are able to reuse tissue archives in contemporary research. |
| Databáze: | OpenAIRE |
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