Sense of Self in Alzheimer’s Research Participants
| Autor: | Ingrid Hellström, Britt-Marie Ternestedt, Astrid Norberg, Ragnhild Hedman, Görel Hansebo |
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| Rok vydání: | 2016 |
| Předmět: |
Aged
80 and over Male 030504 nursing Research Subjects medicine.medical_treatment Psychology of self Disease Middle Aged Self Concept Support group Self-Help Groups 03 medical and health sciences 0302 clinical medicine Alzheimer Disease medicine Humans Female 030212 general & internal medicine 0305 other medical science Psychology Qualitative Research General Nursing Aged Clinical psychology |
| Zdroj: | Clinical Nursing Research. 27:191-212 |
| ISSN: | 1552-3799 1054-7738 |
| DOI: | 10.1177/1054773816672671 |
| Popis: | The sense of self is vulnerable in people with Alzheimer’s disease (AD), and might be positively and negatively influenced by research participation. The purpose of this study was to describe how people with AD express their experience of being a research participant with respect to their sense of self. Interviews and support group conversations involving 13 people with mild and moderate AD were analyzed using qualitative content analysis. Three themes were constructed: contributing to an important cause, gaining from participating, and experiencing risks and drawbacks. Participants described contributing to research as being in line with their lifelong values and lifestyles. They expressed contentment and pride about being research participants, emphasized their positive relationships with the researchers, and described participation as a meaningful activity. When research procedures threatened their sense of self, they were able to reason about risks and decline participation. |
| Databáze: | OpenAIRE |
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