Experiences of Bereaved Family Members Receiving Commemorative Paintings

Autor: Deborah J. Cook, Joshua Piticaru, Meredith Vanstone, Anne Boyle, Neala Hoad, Marilyn Swinton, Feli Toledo, Marisa Ann Azad, Alyson Takaoka, Anne Woods
Rok vydání: 2020
Předmět:
Zdroj: JAMA Network Open
ISSN: 2574-3805
DOI: 10.1001/jamanetworkopen.2020.27259
Popis: Key Points Question What potential role do personalized paintings that are created to honor the lives of deceased patients in the intensive care unit have for grieving family members, and how might they influence family members’ experiences with bereavement? Findings In this qualitative study, families described personalized paintings as representing a legacy of their loved one. Participants indicated that the paintings were symbolic of the care their loved one received, validated the sentiment that the patient was remembered, and helped the families feel less alone during their time of grief. Meaning The creation of personalized patient paintings may foster postmortem connections between family members and clinicians and may ease bereavement following a death in the intensive care unit setting.
This qualitative study uses semistructured interviews to explore the influence of personalized paintings of patients who died in the intensive care unit on family members’ bereavement experience and grief process.
Importance Although family members of patients who die in the intensive care unit commonly experience long-term psychological distress, end-of-life bereavement support programs for such relatives are uncommon. Whether art influences the grief experience of families is largely unexplored. Objective To explore the influence of personalized paintings created to honor deceased critically ill patients on family members’ bereavement experience. Design, Setting, and Participants A qualitative descriptive analysis was conducted of semistructured interviews of grieving relatives who received a painting after the death of their loved one. The deceased patients were from a 21-bed medical-surgical intensive care unit. Eleven families were invited to receive a painting, of whom 1 family declined. A total of 22 family members of 10 patients who died in the intensive care unit were interviewed in the study between July 11, 2017, and May 19, 2019. Interventions Patients were enrolled in an end-of-life care program that elicits and implements wishes of patients and their families to bring peace during the dying process. Selected families of 10 decedents were invited to receive a painting to honor their loved one 1 to 10 months after the patient’s death. Using details about the patient’s life story, the artist created individualized paintings to commemorate each patient. Main Outcomes and Measures The experiences of family members receiving a personalized painting and its reported influence on their grieving experience. Results The family members of 10 decedents (mean [SD] age, 60 [14] years; 5 women [50%]; 8 White patients [80%]) were interviewed. The central theme of art to facilitate healing was illustrated through the following domains: the cocreation process, painting narratives, postmortem connections, and legacy. The process of cocreating the paintings with the artist and family members involved reminiscing, storytelling, and creativity. Family members emphasized the role of art to facilitate healing, exemplified through connections with images portrayed that deeply resonated with memories of their loved one. Participants indicated that the paintings validated that the patient was remembered, helped families feel less alone during a time of grief, honored the loved one’s life, and enhanced connections between family members and clinicians. Conclusions and Relevance This qualitative study’s findings suggest that the creation of personalized paintings commemorating the lives of patients may help foster legacy and postmortem connections with clinicians and may help family members in their healing process.
Databáze: OpenAIRE
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