Preferences regarding disclosure of prognosis and end-of-life care: A survey of cancer patients with advanced disease in a lower-middle-income country
| Autor: | Haroon Hafeez, Arif Jamshed, M. Aasim Yusuf, Ainul Quader, M. A. Shah, Waleed Zafar |
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| Rok vydání: | 2016 |
| Předmět: |
Adult
Male medicine.medical_specialty Palliative care Developing country Truth Disclosure Young Adult 03 medical and health sciences Life Expectancy 0302 clinical medicine Neoplasms Surveys and Questionnaires Health care Humans Medicine Pakistan 030212 general & internal medicine Young adult Developing Countries Poverty Aged Aged 80 and over Physician-Patient Relations Terminal Care business.industry Patient Preference General Medicine Middle Aged Prognosis Anesthesiology and Pain Medicine 030220 oncology & carcinogenesis Family medicine Life expectancy Female business End-of-life care |
| Zdroj: | Palliative Medicine. 30:661-673 |
| ISSN: | 1477-030X 0269-2163 |
| DOI: | 10.1177/0269216315625810 |
| Popis: | Background: Cancer patients’ preferences regarding disclosure of prognosis and end-of-life care remain under-reported from low- and middle-income countries where cancer poses an increasing demand on scarce healthcare resources. A better knowledge of these preferences can help in achievement of shared treatment goals. Aim: To survey preferences of adult cancer patients regarding disclosure of prognosis and end-of-life care Design: A multidimensional questionnaire was developed to survey consecutively sampled patients. A fifth of the participants completed a repeat survey 3 months later. Setting/participants: Adult patients at a specialist cancer center in Pakistan. Results: In total, 520 patients were surveyed initially (participation rate 98.6%) and 100 completed the repeat survey. Three in five respondents wanted a healthcare provider to give them detailed information about their prognosis and life expectancy. Those who wanted information withheld were significantly more likely to be female, to have a lower socioeconomic status, or to have lung cancer. Only two in five patients agreed that they wanted to die at home and more than 90% wanted all possible care till end-of-life. Yet, a little over half also agreed that they did not wish to be placed on a ventilator. In rank ordering preferences about end-of-life, respondents ranked “religious wellbeing” as the highest and “avoiding inappropriate prolongation of dying” as the lowest of six options. Conclusion: A majority of adult cancer patients surveyed in this study wanted a truthful disclosure about their disease prognosis and expressed a preference for hospital-based care at end-of-life. Healthcare providers should find ways to tailor prognostic information to patients’ expressed information needs. |
| Databáze: | OpenAIRE |
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