Quality of life of adult men with Duchenne muscular dystrophy in the Netherlands: implications for care
| Autor: | Henk J. Stam, Michael P. Bergen, Robert F. Pangalila, Geertrudis A.M. van den Bos, Mike J. Kampelmacher, Bart Bartels, Marij E. Roebroeck |
|---|---|
| Přispěvatelé: | Rehabilitation Medicine, Amsterdam Public Health, Public and occupational health |
| Rok vydání: | 2015 |
| Předmět: |
Gerontology
Male Adult Duchenne muscular dystrophy Quality of life medicine.medical_specialty Physical Therapy medicine.medical_treatment Health Status Population Work Capacity Evaluation Physical Therapy Sports Therapy and Rehabilitation Sports Therapy and Rehabilitation Vitality World health Quality of life (healthcare) Leisure Activities SDG 3 - Good Health and Well-being Surveys and Questionnaires Medicine Humans Interpersonal Relations education Psychiatry Netherlands Medicine(all) education.field_of_study Rehabilitation business.industry General Medicine medicine.disease Mental health Muscular Dystrophy Duchenne Cross-Sectional Studies Mental Health Reference values business |
| Zdroj: | Journal of Rehabilitation Medicine, 47(2), 161-166. Foundation for Rehabilitation Information Journal of rehabilitation medicine, 47(2), 161-166. Foundation for Rehabilitation Information Journal of Rehabilitation Medicine, 47(2), 161. Foundation for Rehabilitation Information |
| ISSN: | 1651-2081 1650-1977 |
| Popis: | Objective: To assess quality of life of adults with Duchenne muscular dystrophy in the Netherlands and to identify domains and major problems influencing quality of life. Design: Cross-sectional. Subjects: Seventy-nine men aged >= 20 years with Duchenne muscular dystrophy. Methods: The Medical Outcome Study Short Form-36 (SF-36), World Health Organization Quality of Life - BREF (WHOQOL-BREF) and an interview were used to assess quality of life and problems. Results: Compared with Dutch general population reference values, the SF-36 domains scores were lower on all domains except mental health and role limitations due to emotional problems. On the WHOQOL-BREF the social relationships domain score was lower. Main problems were intimate relationships, work, leisure, transport and meaningfulness of life. Seventy-three percent stated overall quality of life as "(very) good". The SF-36 domains mental health (r(s) 0.53, p |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|