Generic and Disease-specific Health-related Quality of Life in Pediatric Intestinal Failure
| Autor: | Sam M. Han, Charles R. Hong, Gaby Dorval, Biren P. Modi, Alexis P. Hurley, Jessica McCaig, Owen S. Henry, Danielle A. Stamm, Steven J. Staffa |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
Disease specific
Health related quality of life medicine.medical_specialty business.industry Health Status Gastroenterology Disease humanities Cohort Studies Cross-Sectional Studies Caregivers Quality of life Child Preschool Internal medicine Intestinal failure Pediatrics Perinatology and Child Health Cohort Quality of Life medicine Humans In patient Child business Psychosocial |
| Zdroj: | Journal of Pediatric Gastroenterology & Nutrition. 73:338-344 |
| ISSN: | 1536-4801 0277-2116 |
| Popis: | OBJECTIVE The aim of the study was to assess overall and disease-specific health-related quality of life (hrQOL) in patients with pediatric intestinal failure (PIF) and caregivers and elucidate differences from healthy and chronic gastrointestinal (GI) illness cohorts. METHODS Cross-sectional study of patients with PIF and their caregivers managed at a multidisciplinary intestinal rehabilitation program using the PedsQL Generic Core and the Gastrointestinal Symptoms Module to assess generic and disease-specific hrQOL, respectively. These data were compared to established healthy and chronic GI disease controls. RESULTS A total of 53 patients (mean age 6.2 ± 3.9 years) and their caregivers were studied. Patients reported lower generic hrQOL than healthy children (73.0 vs 83.84, P |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|
Plný text