Staff and participant perceptions of optimal recruitment and retention strategies for biomedical cohort studies in the Caribbean
| Autor: | Althea Bailey, Joette A. McKenzie, S Coleman, S Richards, Marshall K. Tulloch-Reid, Ishtar Govia, Kimlin Tam Ashing, Camille Ragin |
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| Rok vydání: | 2021 |
| Předmět: |
Adult
Male Rural Population Jamaica Cancer Research Biomedical Research West Indies Best practice media_common.quotation_subject Black People Stakeholder engagement Interpersonal communication Cohort Studies Young Adult 03 medical and health sciences 0302 clinical medicine Promotion (rank) Humans Medicine 030212 general & internal medicine Qualitative Research Aged media_common Aged 80 and over Caribbean Original Paper Medical education business.industry Focus Groups Middle Aged Focus group Caribbean Region Retention Oncology 030220 oncology & carcinogenesis Cohort Female Perception Recruitment business Cohort study Qualitative research |
| Zdroj: | Cancer Causes & Control |
| ISSN: | 1573-7225 0957-5243 |
| Popis: | Purpose To identify staff and participants perspectives of best practices that facilitate achieving enrollment and retention targets in biomedical cohort studies in Caribbean populations. Methods Eight focus group discussions (FGDs) were held with research stakeholders including research (i) nurses/study supervisors, (ii) field staff/data collectors, and (iii) rural and urban participants of the Third Jamaica Health and Lifestyle Survey (a national NCD risk factor survey with biospecimen collection) to capture qualitative data on experiences with recruitment, training, retention challenges and potential solutions or strategies for strengthening future efforts. Results Our findings indicate that trained, experienced study staff with good interpersonal communication skills enhanced the proficiency of field operations and attracted study participants. Targeted community and stakeholder engagement alongside strong support from the coordinating center increased the reach and efficiency of the data collectors. Timely participant feedback, gender-appropriate approaches, and socioeconomic balance enhanced equitable enrollment and retention of participants of cohort studies particularly the hard to reach groups. Conclusion Well-functioning research teams using traditional and social media promotion, applying gender-appropriate and personalized approaches together with strategies for reaching the less accessible socioeconomic groups, are effective for recruiting and retaining members of a Caribbean cohort. These strategies may also enhance the recruitment of other Black populations in the Diaspora including the US and Caribbean into biomedical studies including cancer research. |
| Databáze: | OpenAIRE |
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