The duty to warn at‐risk relatives—The experience of genetic counselors and medical geneticists
Autor: | Gerald McGwin, Meagan Farmer, Tabitha J. Perry, Christina B. Hurst, Samantha I. Patton, Nathaniel H. Robin |
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Rok vydání: | 2019 |
Předmět: |
0301 basic medicine
medicine.medical_specialty Genetics Medical Genetic counseling MEDLINE Genetic Counseling Guidelines as Topic Disclosure 030105 genetics & heredity Duty to warn 03 medical and health sciences Risk Factors Physicians Genetics medicine Humans Family Genetic Predisposition to Disease Confidentiality Genetic Testing Genetic risk Genetics (clinical) Shared experience Patient confidentiality 030104 developmental biology Family medicine Duty to Warn Psychology |
Zdroj: | American Journal of Medical Genetics Part A. 182:314-321 |
ISSN: | 1552-4833 1552-4825 |
DOI: | 10.1002/ajmg.a.61425 |
Popis: | Studies published over 15 years ago surveyed genetic counselors (GC) and medical geneticists (MG) to examine their clinical experiences with the conflict of "duty to warn" versus patient confidentiality. Federal and state laws pertaining to medical professionals' duty to warn have since been implemented following the publications of these studies. Using a merged version of surveys employed in the prior studies, this study seeks to understand clinicians' current decision-making process when faced with patient refusal to inform at-risk relatives, as well as their familiarity with and opinions of laws and guidelines covering this issue. Consistent with the previous studies, the majority of MG and almost half of GC experience patient refusal. Significantly, fewer MG and GC believe they had a duty to warn their patients' relatives of genetic risk. Only 8% of participants believe current guidelines effectively address the issue of duty to warn. Participant awareness of federal or state laws regulating the disclosure of genetic information remains low. The conflict of duty to warn remains a shared experience among genetics professionals, and resources are needed to facilitate informed decision-making. Participants' opinions of current policies and clinical decisions may guide professional actions regarding duty to warn. |
Databáze: | OpenAIRE |
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