Reproductive decisions in people with sickle cell disease or sickle cell trait
| Autor: | Marie L. Suarez, Alexis A. Thompson, Bonnye Johnson, Robert E. Molokie, Patricia E. Hershberger, Agatha M. Gallo, Richard J. Labotka, Diana J. Wilkie |
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| Rok vydání: | 2010 |
| Předmět: |
Male
Anemia media_common.quotation_subject Health Status Decision Making Context (language use) Disease Anemia Sickle Cell Choice Behavior Article Developmental psychology Sickle Cell Trait Hemoglobins Pregnancy Intervention (counseling) hemic and lymphatic diseases Surveys and Questionnaires medicine Humans General Nursing media_common Reproductive health Probability Sickle cell trait business.industry Reproduction Genetic Variation medicine.disease Focus group Feeling Female business Attitude to Health Clinical psychology |
| Zdroj: | Western journal of nursing research. 32(8) |
| ISSN: | 1552-8456 |
| Popis: | In the context of an inherited condition such as sickle cell disease (SCD), it is critical to understand how people with SCD or carriers (sickle cell trait [SCT]) face the challenges of making informed reproductive health decisions. The purpose of this analysis was to examine the beliefs, attitudes, and personal feelings of people with sickle cell disease or sickle cell trait related to making informed reproductive health decisions. Three focus groups were conducted with a total of 15 people who had either SCD or SCT. Five themes were identified: health-related issues in sickle cell disease, testing for sickle cell trait, partner choice, sharing sickle cell status with partners, and reproductive options. These findings enhance understanding of the reproductive experiences in people with SCD and SCT and provide the groundwork for developing an educational intervention focused on making informed decisions about becoming a parent. |
| Databáze: | OpenAIRE |
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