Population based report on health related quality of life in adolescents born very preterm

Autor: Hans Ulrich Bucher, Mark Raymond Adams, Michael von Rhein, Beatrice Latal, Cristina Borradori Tolsa, Giancarlo Natalucci
Přispěvatelé: University of Zurich, Natalucci, Giancarlo
Jazyk: angličtina
Rok vydání: 2017
Předmět:
Very Low Birth Weight/growth & development
Male
Pediatrics
medicine.medical_specialty
Adolescent
Birth weight
Population
610 Medicine & health
Cerebral palsy
03 medical and health sciences
0302 clinical medicine
Quality of life
030225 pediatrics
medicine
Infant
Very Low Birth Weight
Attention deficit hyperactivity disorder
Humans
2735 Pediatrics
Perinatology and Child Health
education
education.field_of_study
ddc:618
business.industry
Infant
Newborn
Obstetrics and Gynecology
Gestational age
Infant
2729 Obstetrics and Gynecology
Gross Motor Function Classification System
Neurodevelopmental Disorders/epidemiology
Adolescent Development
10027 Clinic for Neonatology
medicine.disease
Newborn
humanities
10036 Medical Clinic
Neurodevelopmental Disorders
Infant
Extremely Premature
Extremely Premature/growth & development
Pediatrics
Perinatology and Child Health
Cohort
Quality of Life
Female
business
030217 neurology & neurosurgery
Zdroj: Early Human Development, Vol. 104 (2017) pp. 7-12
ISSN: 0378-3782
Popis: Background As the survival rate of preterm infants constantly improves, knowledge on the impact of prematurity on long-term health-related quality of life (HRQoL) is important for clinical and parental guidance. We aimed to assess HRQoL in a national cohort of young adolescents born very preterm, and to identify predictors for poorer HRQoL. Patients and methods All surviving Swiss live-born children below 30weeks of gestation during the year 2000 (290 subjects) were contacted at age 12years, together with their parents (262 families). HRQoL of the study children was assessed using both the Kidscreen-27 (KS-27) self- and parent forms. Neonatal data of the cohort were prospectively collected. Results Among the contacted families, 176 returned the complete set of questionnaires for 194 adolescents (67%): 100 (51%) females, mean (range) gestational age was 27.8 (24.1–29.9) weeks, birth weight 1025 (420–1730) grams, mean age at assessment 12.0 (11.0–13.0) years. Included children had similar neonatal and socio-demographic characteristics as non-responders. Average self- and parent-reported HRQoL of former preterms was similar to Swiss KS-27 norms. According to the multivariable models (r 2 =0.2), surgical closure of patent ductus arteriosus, attention deficit/hyperactivity disorder, severe neurodevelopment impairment were negatively associated with both self- and parent-reported HRQoL. Conclusions HRQoL in this population-based cohort of adolescents born very preterm is good. Surgical closure of patent ductus arteriosus, attention deficit/hyperactivity disorder, severe neurodevelopment impairment were identified as predictors of poorer HRQoL using multivariable models, explaining however only a low proportion of variance in HRQoL.
Databáze: OpenAIRE
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