Recommendations for the Organization of Multidisciplinary Clinical Care Teams in Parkinson's Disease
| Autor: | Joaquim J. Ferreira, Michael S. Okun, Nir Giladi, Jochen Klucken, Giuseppe Frazzitta, Marten Munneke, Anne Louise Lafontaine, Carsten Eggers, Jori Fleisher, Nina Browner, Peter Fletcher, John Nutt, Connie Marras, Marlies van Nimwegen, Mark Guttman, Robert Iansek, Sotirios A. Parashos, Danique L.M. Radder, Guido Alves, Georg Ebersbach, Jorik Nonnekes, Suketu M. Khandhar, Bastiaan R. Bloem, K. Ray Chaudhuri, Giovanni Abbruzzese |
|---|---|
| Přispěvatelé: | Publica |
| Rok vydání: | 2020 |
| Předmět: |
0301 basic medicine
Consensus Psychological intervention Telehealth Patient Advocacy Article Tertiary Care Centers 03 medical and health sciences Cellular and Molecular Neuroscience All institutes and research themes of the Radboud University Medical Center 0302 clinical medicine Nursing Ambulatory care Multidisciplinary approach Patient-Centered Care Medicine Humans Neurologists Clinical care Patient Care Team practice-based evidence business.industry organization of care Parkinson Disease Patient Preference Guideline Disorders of movement Donders Center for Medical Neuroscience [Radboudumc 3] Checklist Optimal management 030104 developmental biology Evidence-Based Practice Health Care Surveys interdisciplinary Practice Guidelines as Topic Parkinson’s disease Neurology (clinical) business guideline Delivery of Health Care 030217 neurology & neurosurgery multidisciplinary |
| Zdroj: | Journal of Parkinson's Disease, 10, 1087-1098 Journal of Parkinson's disease Journal of Parkinson's Disease, 10, 3, pp. 1087-1098 |
| ISSN: | 1087-1098 1877-7171 |
| Popis: | Background Optimal management in expert centers for Parkinson's disease (PD) usually involves pharmacological and non-pharmacological interventions, delivered by a multidisciplinary approach. However, there is no guideline specifying how this model should be organized. Consequently, the nature of multidisciplinary care varies widely. Objective To optimize care delivery, we aimed to provide recommendations for the organization of multidisciplinary care in PD. Methods Twenty expert centers in the field of multidisciplinary PD care participated. Their leading neurologists completed a survey covering eight themes: elements for optimal multidisciplinary care; team members; role of patients and care partners; team coordination; team meetings; inpatient versus outpatient care; telehealth; and challenges towards multidisciplinary care. During a consensus meeting, outcomes were incorporated into concept recommendations that were reviewed by each center's multidisciplinary team. Three patient organizations rated the recommendations according to patient priorities. Based on this feedback, a final set of recommendations (essential elements for delivery of multidisciplinary care) and considerations (desirable elements) was developed. Results We developed 30 recommendations and 10 considerations. The patient organizations rated the following recommendations as most important: care is organized in a patient-centered way; every newly diagnosed patient has access to a core multidisciplinary team; and each team has a coordinator. A checklist was created to further facilitate its implementation. Conclusion We provide a practical tool to improve multidisciplinary care for persons with PD at the organizational level. Future studies should focus on implementing these recommendations in clinical practice, evaluating their potential applicability and effectiveness, and comparing alternative models of PD care. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|