Living with CHD: quality of life (QOL) in early adult life
| Autor: | Marta Castro, Isabela Freitas, José Carlos Areias, Sofia Sarmento, Samantha Matos, Catarina Pinto, Victor Viana, Maria Emilia G Areias, Patrícia F. Vieira |
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| Přispěvatelé: | Faculdade de Ciências da Nutrição e Alimentação |
| Jazyk: | angličtina |
| Rok vydání: | 2014 |
| Předmět: |
Adult
Heart Defects Congenital Male Gerontology Adolescent media_common.quotation_subject Family support Comorbidity Young Adult Social support Quality of life Interview Psychological Prevalence Humans Medicine Sex Distribution Young adult Child media_common Portugal business.industry Mental Disorders Health sciences Medical and Health sciences Ciências médicas e da saúde Social Support General Medicine Pediatrics Perinatology and Child Health Quality of Life Medical and Health sciences Female Educational Measurement Psychological resilience Psychiatric interview Ciências da Saúde Ciências médicas e da saúde Cardiology and Cardiovascular Medicine business Psychosocial Psychopathology |
| Zdroj: | Repositório Científico de Acesso Aberto de Portugal Repositório Científico de Acesso Aberto de Portugal (RCAAP) instacron:RCAAP |
| ISSN: | 1047-9511 |
| Popis: | AimsThe aim of this study was to assess the quality of life, psychiatric morbidity, and the psychosocial adjustment of adolescents and young adults with CHD, and determine which variables play a role in buffering stress and promoting resilience and which ones have a detrimental effect; and to investigate the situation on school performance and failures, social and family support, physical limitations, and body image of these patients.MethodsThe study enrolled 137 CHD patients (79 male), with age ranging from 12 to 26 years old (M=17.60±3.450 years). The patients were interviewed regarding social support, family educational style, self-image, demographic information, and physical limitations. They responded to questions in a standardised psychiatric interview (SADS-L) and completed self-reported questionnaires for the assessment of quality of life (WHOQOL-BREF) and psychosocial adjustment (YSR/ASR).ResultsWe found a 19.7% lifetime prevalence of psychopathology in our patients (27.6% in female and 13.9% in male). Of them, 48% had retentions in school (M=1.61 year±0.82). The perception of quality of life in CHD patients is better compared with the Portuguese population in the social relationships and environmental dimensions. However, it is worse in complex forms of CHD than in moderate-to-mild ones, in cyanotic versus acyanotic patients, in moderate-to-severe versus mild residual lesions, in patients submitted versus those not submitted to surgery, in patients with versus without physical limitations, and patients who have need for medication versus those who do not. Social support is very important in improving quality of life of patients in all dimensions as well as academic performance.ConclusionsFemale patients and patients with poor academic performance and poor social support have worse psychosocial adjustment and perception of quality of life. |
| Databáze: | OpenAIRE |
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