What to Expect When You are No Longer Expecting: Information Needs of Women who Experienced a Miscarriage
| Autor: | Briana Hollins, Mona Y. Alqassim, Lucia Guerra-Reyes, Maria Wolters, K. Cassie Kresnye, Katie A. Siek |
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| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
Pregnancy
Medical education Sociotechnical system business.industry miscarriage Information access Stigma (botany) 020207 software engineering Information needs Timeline 02 engineering and technology medicine.disease Miscarriage sociotechnical systems 020204 information systems Health care 0202 electrical engineering electronic engineering information engineering medicine Psychology business resource needs |
| Zdroj: | Kresnye, K C, Alqassim, M, Hollins, B, Wolters, M & Siek, K A 2020, What to Expect When You are No Longer Expecting: Information Needs of Women who Experienced a Miscarriage . in Proceedings of the 14th EAI International Conference on Pervasive Computing Technologies for Healthcare 2020 . Association for Computing Machinery (ACM), pp. 85-96, 14th EAI International Conference on Pervasive Computing Technologies for Healthcare, Online, United States, 6/10/20 . https://doi.org/10.1145/3421937.3421995 PervasiveHealth |
| DOI: | 10.1145/3421937.3421995 |
| Popis: | Even though miscarriages are a common experience, there remains a discrepancy between the information needed after a pregnancy is lost and the information received. We explored the reasons for this gap as part of an eight-week online study with 42 participants who experienced a miscarriage. Common online sources of information were forums, blogs, and Facebook. Participants were interested in general information about miscarriage, counselling resources, others' experiences, and information from health care providers. Barriers to information access were both external (e.g., difficulty locating resources) and internal (e.g., self-blame or stigma). We map these information needs and barriers to a generalized miscarriage timeline crafted from participants' individual experiences and discuss implications for the design of sociotechnical systems to support people through miscarriage and beyond. |
| Databáze: | OpenAIRE |
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